CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18804 Delayed motor milestones specify text

The free-text field related to 'Delayed motor milestones indicator'. Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10523 Foot surgery indicator

The indicator of whether the participant/subject has had foot surgery

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C06452 Neuromuscular scoliosis surgery treat indicator

Indicator of whether the scoliosis has been surgical treated

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10524 Ambulation affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10500 Symptom onset age value

Age when symptoms first experienced

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10508 Genetic diagnosis established date and time

Date (and time if applicable and known) the genetic diagnosis was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10516 Scoliosis maximum spine curvature measurement

The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10526 Assistive walking device started use age value

Age when the participant/subject began using the assistive walking device

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10517 Scoliosis maximum spine curvature anatomic site

The location of the maximum spine curvature for a participant/subject who has been diagnosed with scoliosis

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
Displaying 301 - 325 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.