CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 201 - 225 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Friedreich's Ataxia Friedreich's Ataxia
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10603 Cardiac MRI left ventricle mass measurement

Measurement in grams of the mass of the left ventricle as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C52586 Cardiac index value

Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18619 Delayed motor milestone specify text

Specify in text the motor milestones that are were delayed

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Friedreich's Ataxia Friedreich's Ataxia
C58699 Cardiac magnetic resonance left ventricular stroke volume integer

Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C12121 Friedreich's Ataxia Impact Scale (FAIS) - isolation places confidence loss scale

Scale used to determine how much the patient was bothered by lost confidence to go places as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C12097 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning hanging walking scale

Scale used to determine how much the patient was bothered by having to hang on to something as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12057 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking strangers scale

Scale used to determine how much the patient was bothered by being nervous to talk to strangers as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C17465 Cardiovascular history abnormal echocardiogram other text

Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C12129 Friedreich's Ataxia Impact Scale (FAIS) - mood fed up feeling scale

Scale used to determine how much the patient was bothered by feeling fed up as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12038 Friedreich's Ataxia Impact Scale (FAIS) - body movement body control lack scale

Scale used to determine how much the patient was bothered the by lack of body control as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C10705 Walking difficulty age interfered with activities value

Age of participant/subject when difficulty with walking interfered with activities

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C04513 ECG ST segment abnormality status

Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) appears abnormal on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C08505 36-item Short Form Health Survey (SF-36) - Health limited carrying groceries score

Score of surveyee-reported limited lifting or carrying groceries due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Friedreich's Ataxia Friedreich's Ataxia
C12105 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking advance knowledge scale

Scale used to determine how much the patient was bothered by needing to know in advance where he was walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C17528 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex brachioradialis jerk right score

Score for right-side brachioradialis jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Supplemental Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C12065 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning food cutting scale

Scale used to determine how much the patient was limited in his ability to cut up food when eating as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C17473 Cardiovascular history cardiac surgery date

Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C12137 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions appearance self-conscious scale

Scale used to determine how much the patient was bothered by being self-conscious about his appearance as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
Displaying 201 - 225 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.