CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04509 ECG PR interval

Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C17461 Cancer history type text

Text description of the type of cancer the participant/subject was or is diagnosed with

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10754 ECG performed indicator

The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58778 Tissue doppler mitral annulus septal medial wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10716 Canine assistance use indicator

Indicator whether the participant/subject uses canine assistance for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C18778 ECG ventricular arrhythmia type other text

The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10556 Pregnant ever indicator

Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C10879 Holter exam arrhythmias identified type

Type of arrhythmias identified during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C17512 Walking difficulty age need permanent support indicator

Indicator related to age of participant/subject needing permanent support for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C52586 Cardiac index value

Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C58762 Heart rate value

Value in beats per minute of the subject/participant's heart rate

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10523 Foot surgery indicator

The indicator of whether the participant/subject has had foot surgery

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C58770 Tissue doppler mitral annulus lateral wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler lateral wall (a prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17470 Cardiovascular history arrhythmia other text

Text description of any cardiac arrhythmia the participant/subject has or had in a form other than atrial fibrillation, atrial flutter, supraventricular tachycardia, ventricular tachycardia, or bradycardia

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.