CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17464 Cardiovascular history abnormal echocardiogram left ventricular hypertrophy indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting left ventricular hypertrophy (LVH)

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C12128 Friedreich's Ataxia Impact Scale (FAIS) - mood annoyed feeling scale

Scale used to determine how much the patient was bothered by feeling annoyed as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12037 Friedreich's Ataxia Impact Scale (FAIS) - body movement muscle weakness scale

Scale used to determine how much the patient was bothered by muscle weakness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10704 Walking difficulty age others noticed value

Age when other people first noticed the participant's/subject's gait disturbances

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C08504 36-item Short Form Health Survey (SF-36) - Health limited moderate activities score

Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Friedreich's Ataxia Friedreich's Ataxia
C12104 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking long distances inability scale

Scale used to determine how much the patient was bothered by being unable to walk long distances as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17527 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex brachioradialis jerk left score

Score for left-side brachioradialis jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Supplemental Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12064 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning picking things up scale

Scale used to determine how much the patient was limited in his ability to pick things up from floor as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17472 Cardiovascular history arrhythmia ventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C12136 Friedreich's Ataxia Impact Scale (FAIS) - mood tearful feeling scale

Scale used to determine how much the patient was bothered by feeling tearful as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10712 Walking use 2 cane crutch indicator

Indicator whether the participant/subject uses two canes or crutches for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10759 ECG premature ventricular contractions status

Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs).

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C08512 36-item Short Form Health Survey (SF-36) - Health limited bathing dressing score

Score of surveyee-reported limited bathing or dressing due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Friedreich's Ataxia Friedreich's Ataxia
C12112 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking unstable scale

Scale used to determine how much the patient was bothered by his walk not being stable as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12072 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning food eating scale

Scale used to determine how much the patient was limited in his ability to eat food as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17480 Diabetes mellitus complications type

Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C12144 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions withdrawn feeling scale

Scale used to determine how much the patient was bothered by feeling withdrawn as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration.

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C12080 Friedreich's Ataxia Impact Scale (FAIS) - ADL shower bath movement scale

Scale used to determine how much the patient was limited in his ability to get in and out of the shower and/or bath as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17489 Psychotic disorder indicator

Indicator as to whether the participant/subject has had a psychotic disorder diagnosis.

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C12040 Friedreich's Ataxia Impact Scale (FAIS) - body movement heavy legs scale

Scale used to determine how much the patient was bothered by heavy legs as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject.

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
Displaying 151 - 175 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.