CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0920-C10680	C10680	Unpaid assistance per day hours number	How many hours in a typical 24-hour day do you have someone with you [unpaid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58774	C58774	Tissue doppler lateral tricuspid annulus annual systolic peak velocity measurement	Measurement of the annual systolic peak velocity of the tissue doppler lateral tricuspid annulus (Rv s')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C19058	C19058	Psychiatric history psychotic diagnosis other text	The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10875	C10875	Holter exam minimum heart rate	Minimum heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10546	C10546	Depression first episode diagnosed age value	Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C18805	C18805	Hospitalization other text	The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10704	C10704	Walking difficulty age others noticed value	Age when other people first noticed the participant's/subject's gait disturbances	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10770	C10770	Echocardiogram left ventricular end diastolic internal dimension z score	Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17467	C17467	Cardiovascular history arrhythmia atrial flutter indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial flutter	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11930	C11930	Modified Fatigue Impact Scale (MFIS) - physical sub score	Sum of MFIS Physical items (range: 0-36)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10603	C10603	Cardiac MRI left ventricle mass measurement	Measurement in grams of the mass of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11996	C11996	Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text	Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10504	C10504	Impaired physical ability during infancy indicator	Whether the participant/subject has a history of impaired physical abilities during infancy	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17828	C17828	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58699	C58699	Cardiac magnetic resonance left ventricular stroke volume integer	Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C17864	C17864	Timed 25-Foot Walk (T25FW) - trial number	Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58707	C58707	Cardiac magnetic resonance right ventricular ejection fraction integer	Integer representing the patient's right ventricular ejection fraction using the right ventricular stroke volume as a percentage of the right ventricular end diastolic volume	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01703	C01703	Lab panel category	Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10521	C10521	Hearing affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's hearing	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10741	C10741	Echocardiogram aortic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.