CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 126 - 150 of 715

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58760	Left ventricle outflow tract V1 doppler signal integral value	The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C17532	Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system vibratory sense finger right duration	Delay in seconds before participant/subject feels vibration in the right-hand fingers, as part of the Friedreich's Ataxia Rating Scale (FARS).	Supplemental	Friedreich's Ataxia Rating Scale (FARS)	True	Friedreich's Ataxia	Friedreich's Ataxia
C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject.	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
C58768	Transmitral flow deceleration duration	Duration in milliseconds of the time required for transmitral flow deceleration	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10609	Hospitalization reason	Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
C17828	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
C10518	Scoliosis last assessment date and time	Date (and time if applicable and known) the participant/subject was last assessed for scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol.	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
C58776	Biplane left atrial volume measurement	Measurement of the biplane left atrial volume (LAV)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10731	Echocardiogram right atrial enlargement status	Status of absence or presence of right atrial enlargement on the echocardiogram.	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C12037	Friedreich's Ataxia Impact Scale (FAIS) - body movement muscle weakness scale	Scale used to determine how much the patient was bothered by muscle weakness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)	Supplemental	Friedreich's Ataxia Impact Scale (FAIS)	True	Friedreich's Ataxia	Friedreich's Ataxia
C18618	Neonatal problem other text	Specify in text the problems other than those listed that occurred during the neonatal period	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C10704	Walking difficulty age others noticed value	Age when other people first noticed the participant's/subject's gait disturbances	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
C11996	Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text	Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
C10741	Echocardiogram degree of aortic regurgitation status	Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10712	Walking use 2 cane crutch indicator	Indicator whether the participant/subject uses two canes or crutches for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10759	ECG premature ventricular contractions status	Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs).	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C17864	Timed 25-Foot Walk (T25FW) - trial number	Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
C10772	Echocardiogram left atrial antero - posterior dimension z-score	Calculated z-score for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C17523	Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex ankle jerk left score	Score for left-side ankle jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).	Supplemental	Friedreich's Ataxia Rating Scale (FARS)	True	Friedreich's Ataxia	Friedreich's Ataxia
C10546	Depression first episode diagnosed age value	Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
C21945	Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale	Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL).	Supplemental	Pediatric Quality of Life Inventory (PEDSQL)	True	Friedreich's Ataxia	Friedreich's Ataxia
C12100	Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning bumping walking scale	Scale used to determine how much the patient was bothered by bumping into things when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)	Supplemental	Friedreich's Ataxia Impact Scale (FAIS)	True	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.