C58760
Left ventricle outflow tract V1 doppler signal integral value
The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C17532
Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system vibratory sense finger right duration
Delay in seconds before participant/subject feels vibration in the right-hand fingers, as part of the Friedreich's Ataxia Rating Scale (FARS).
Supplemental
Friedreich's Ataxia Rating Scale (FARS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C02024
Medication prior or concomitant indication text
Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject.
Supplemental
Prior and Concomitant Medications
False
Friedreich's Ataxia
Friedreich's Ataxia
C58768
Transmitral flow deceleration duration
Duration in milliseconds of the time required for transmitral flow deceleration
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C10609
Hospitalization reason
Reason why the participant/subject was hospitalized, excluding all surgeries
Supplemental
Cardiac End Points
False
Friedreich's Ataxia
Friedreich's Ataxia
C17828
Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale
Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form
Supplemental
Modified Fatigue Impact Scale (MFIS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C10518
Scoliosis last assessment date and time
Date (and time if applicable and known) the participant/subject was last assessed for scoliosis
Supplemental
Medical History of Friedreich's Ataxia
False
Friedreich's Ataxia
Friedreich's Ataxia
C00704
Alcohol drinking day average drinks consumed range
The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol.
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C58776
Biplane left atrial volume measurement
Measurement of the biplane left atrial volume (LAV)
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C10731
Echocardiogram right atrial enlargement status
Status of absence or presence of right atrial enlargement on the echocardiogram.
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C12037
Friedreich's Ataxia Impact Scale (FAIS) - body movement muscle weakness scale
Scale used to determine how much the patient was bothered by muscle weakness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C18618
Neonatal problem other text
Specify in text the problems other than those listed that occurred during the neonatal period
Supplemental
Medical History of Friedreich's Ataxia
False
Friedreich's Ataxia
Friedreich's Ataxia
C10704
Walking difficulty age others noticed value
Age when other people first noticed the participant's/subject's gait disturbances
Supplemental
Activities of Daily Living and Gait
False
Friedreich's Ataxia
Friedreich's Ataxia
C00712
Subscribed drug or substance illicitly used category
Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C10877
Holter exam heart block episode type
Type of episode(s) of heart block assessed during the Holter examination
Supplemental
Holter Exam
False
Friedreich's Ataxia
Friedreich's Ataxia
C11996
Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text
Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)
Supplemental
Timed 25-Foot Walk (T25-FW)
False
Friedreich's Ataxia
Friedreich's Ataxia
C10741
Echocardiogram degree of aortic regurgitation status
Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C10712
Walking use 2 cane crutch indicator
Indicator whether the participant/subject uses two canes or crutches for walking
Supplemental
Activities of Daily Living and Gait
False
Friedreich's Ataxia
Friedreich's Ataxia
C10759
ECG premature ventricular contractions status
Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs).
Supplemental
Electrocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C17864
Timed 25-Foot Walk (T25FW) - trial number
Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)
Supplemental
Timed 25-Foot Walk (T25-FW)
False
Friedreich's Ataxia
Friedreich's Ataxia
C10772
Echocardiogram left atrial antero - posterior dimension z-score
Calculated z-score for the left atrial antero - posterior dimension measured with echocardiography
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C17523
Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex ankle jerk left score
Score for left-side ankle jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).
Supplemental
Friedreich's Ataxia Rating Scale (FARS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10546
Depression first episode diagnosed age value
Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier
Supplemental
Medical History
False
Friedreich's Ataxia
Friedreich's Ataxia
C21945
Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale
Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Friedreich's Ataxia
Friedreich's Ataxia
C12100
Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning bumping walking scale
Scale used to determine how much the patient was bothered by bumping into things when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia