C08514
36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator
Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Friedreich's Ataxia
Friedreich's Ataxia
C12116
Friedreich's Ataxia Impact Scale (FAIS) - isolation home visits inability scale
Scale used to determine how much the patient was bothered by not being able to visit other people's homes as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C58766
Early diastolic transmitral flow velocity measurement
Measurement in centimeters per second of the early diastolic transmitral flow velocity (E)
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C04506
ECG right ventricular hypertrophy status
Status of right ventricular hypertrophy on the electrocardiogram (EKG) being reported
Supplemental
Electrocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C12076
Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning computer use scale
Scale used to determine how much the patient was limited in his ability to use the computer as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C17826
Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale
Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form
Supplemental
Modified Fatigue Impact Scale (MFIS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C10543
Cancer head or neck radiation treatment indicator
Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation
Supplemental
Medical History
False
Friedreich's Ataxia
Friedreich's Ataxia
C58774
Tissue doppler lateral tricuspid annulus annual systolic peak velocity measurement
Measurement of the annual systolic peak velocity of the tissue doppler lateral tricuspid annulus (Rv s')
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C12084
Friedreich's Ataxia Impact Scale (FAIS) - ADL slow movement scale
Scale used to determine how much the patient was limited by slowness as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10728
Echocardiogram LVIDs measurement
Left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C18729
Lab panel other text
The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)
Supplemental
Laboratory Tests
False
Friedreich's Ataxia
Friedreich's Ataxia
C12044
Friedreich's Ataxia Impact Scale (FAIS) - body movement spasms scale
Scale used to determine how much the patient was bothered by spasms as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C17466
Cardiovascular history arrhythmia atrial fibrillation indicator
Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation
Supplemental
Medical History
False
Friedreich's Ataxia
Friedreich's Ataxia
C01012
Physical exam body system result type
Assessment result of each body system examined
Supplemental
Physical Examination
False
Friedreich's Ataxia
Friedreich's Ataxia
C10875
Holter exam minimum heart rate
Minimum heart rate measured during the Holter examination
Supplemental
Holter Exam
False
Friedreich's Ataxia
Friedreich's Ataxia
C11993
Timed 25-Foot Walk (T25FW) - bilateral assistance device type
Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)
Supplemental
Timed 25-Foot Walk (T25-FW)
False
Friedreich's Ataxia
Friedreich's Ataxia
C12092
Friedreich's Ataxia Impact Scale (FAIS) - ADL shower bath wash scale
Scale used to determine how much the patient was limited in his ability to wash himself in the shower/bath as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10738
Echocardiogram peak systolic pressure gradient measurement
Peak systolic pressure gradient measured with echocardiography.
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C10603
Cardiac MRI left ventricle mass measurement
Measurement in grams of the mass of the left ventricle as obtained by cardiac MRI
Supplemental
Cardiac Magnetic Resonance Imaging
False
Friedreich's Ataxia
Friedreich's Ataxia
C12052
Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing slurred speech scale
Scale used to determine how much the patient was bothered by slurred speech as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C17474
Cardiovascular history cardiac surgery indicator
Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention
Supplemental
Medical History
False
Friedreich's Ataxia
Friedreich's Ataxia
C12002
Timed 25-Foot Walk (T25FW) - more than two attempts text
Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)
Supplemental
Timed 25-Foot Walk (T25-FW)
False
Friedreich's Ataxia
Friedreich's Ataxia
C12100
Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning bumping walking scale
Scale used to determine how much the patient was bothered by bumping into things when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10770
Echocardiogram left ventricular end diastolic internal dimension z score
Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography.
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C58699
Cardiac magnetic resonance left ventricular stroke volume integer
Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance
Supplemental
Cardiac Magnetic Resonance Imaging
False
Friedreich's Ataxia
Friedreich's Ataxia