CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12090 Friedreich's Ataxia Impact Scale (FAIS) - ADL dress undress scale

Scale used to determine how much the patient was limited in his ability to get dressed or undressed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10736 Echocardiogram left ventricular dilated indicator

Indicator of whether the echocardiogram shows that the participant/subject has a dilated left ventricle.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C12050 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing self-conscious voice scale

Scale used to determine how much the patient was bothered by being self-conscious about his voice as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17472 Cardiovascular history arrhythmia ventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C58693 Cardiac implant device place indicator

Indicator of whether a cardiac implant device was placed

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C12098 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning jerky walk scale

Scale used to determine how much the patient was bothered by walking jerky as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10768 Echocardiogram left ventricular end-diastolic posterior wall thickness z score

Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C12058 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking avoidance scale

Scale used to determine how much the patient was bothered by not talking as much or avoiding talking where possible as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17480 Diabetes mellitus complications type

Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C08504 36-item Short Form Health Survey (SF-36) - Health limited moderate activities score

Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Friedreich's Ataxia Friedreich's Ataxia
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C21950 Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale

Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C10517 Scoliosis maximum spine curvature anatomic site

The location of the maximum spine curvature for a participant/subject who has been diagnosed with scoliosis

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C12036 Friedreich's Ataxia Impact Scale (FAIS) - body movement planning more scale

Scale used to determine how much the patient was bothered when more planning was needed to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C21960 Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale

Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10703 Walking difficulty age started value

Age when participant/subject first noticed problems with walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Friedreich's Ataxia Friedreich's Ataxia
C12121 Friedreich's Ataxia Impact Scale (FAIS) - isolation places confidence loss scale

Scale used to determine how much the patient was bothered by lost confidence to go places as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C10711 Walking cane use age started value

Age of the participant/subject when he/she began using a cane for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
Displaying 76 - 100 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.