C12090
Friedreich's Ataxia Impact Scale (FAIS) - ADL dress undress scale
Scale used to determine how much the patient was limited in his ability to get dressed or undressed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10736
Echocardiogram left ventricular dilated indicator
Indicator of whether the echocardiogram shows that the participant/subject has a dilated left ventricle.
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C12050
Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing self-conscious voice scale
Scale used to determine how much the patient was bothered by being self-conscious about his voice as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C17472
Cardiovascular history arrhythmia ventricular tachycardia indicator
Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia
Supplemental
Medical History
False
Friedreich's Ataxia
Friedreich's Ataxia
C58693
Cardiac implant device place indicator
Indicator of whether a cardiac implant device was placed
Supplemental
Holter Exam
False
Friedreich's Ataxia
Friedreich's Ataxia
C12000
Timed 25-Foot Walk (T25FW) - trial 2 not completed reason
Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)
Supplemental
Timed 25-Foot Walk (T25-FW)
False
Friedreich's Ataxia
Friedreich's Ataxia
C12098
Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning jerky walk scale
Scale used to determine how much the patient was bothered by walking jerky as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10768
Echocardiogram left ventricular end-diastolic posterior wall thickness z score
Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography.
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C58697
Cardiac magnetic resonance left ventricular end diastolic volume integer
Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters
Supplemental
Cardiac Magnetic Resonance Imaging
False
Friedreich's Ataxia
Friedreich's Ataxia
C12058
Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking avoidance scale
Scale used to determine how much the patient was bothered by not talking as much or avoiding talking where possible as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C17480
Diabetes mellitus complications type
Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing
Supplemental
Medical History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00215
Living with person relationship type
Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays
Supplemental
Social Status
False
Friedreich's Ataxia
Friedreich's Ataxia
C08504
36-item Short Form Health Survey (SF-36) - Health limited moderate activities score
Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Friedreich's Ataxia
Friedreich's Ataxia
C11928
Modified Fatigue Impact Scale (MFIS) - limit physical activity score
Scale for having limited physical activities as part of Modified Fatigue Impact Scale form
Supplemental
Modified Fatigue Impact Scale (MFIS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C21950
Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale
Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10517
Scoliosis maximum spine curvature anatomic site
The location of the maximum spine curvature for a participant/subject who has been diagnosed with scoliosis
Supplemental
Medical History of Friedreich's Ataxia
False
Friedreich's Ataxia
Friedreich's Ataxia
C00703
Tobacco use started age value
Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C12036
Friedreich's Ataxia Impact Scale (FAIS) - body movement planning more scale
Scale used to determine how much the patient was bothered when more planning was needed to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C21960
Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale
Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Friedreich's Ataxia
Friedreich's Ataxia
C10709
Walking assistive device indicator
Indicator of whether the participant/subject uses an assistive device for walking
Supplemental
Medical History of Friedreich's Ataxia
False
Friedreich's Ataxia
Friedreich's Ataxia
C10703
Walking difficulty age started value
Age when participant/subject first noticed problems with walking
Supplemental
Activities of Daily Living and Gait
False
Friedreich's Ataxia
Friedreich's Ataxia
C08519
36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator
Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Friedreich's Ataxia
Friedreich's Ataxia
C12121
Friedreich's Ataxia Impact Scale (FAIS) - isolation places confidence loss scale
Scale used to determine how much the patient was bothered by lost confidence to go places as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C00711
Tobacco prior use indicator
Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C10711
Walking cane use age started value
Age of the participant/subject when he/she began using a cane for walking
Supplemental
Activities of Daily Living and Gait
False
Friedreich's Ataxia
Friedreich's Ataxia