CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

447 results.

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Operations

Selected 22 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0928-C10524	C10524	Ambulation affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58688	C58688	Heart symptomatic arrhythmias ventricular origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10500	C10500	Symptom onset age value	Age when symptoms first experienced	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10508	C10508	Genetic diagnosis established date and time	Date (and time if applicable and known) the genetic diagnosis was established	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Core	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01709	C01709	Lab test result status	Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58689	C58689	Chest discomfort cardiac cause history indicator	Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10501	C10501	Diagnosis initial age value	Age of the participant/subject when initially diagnosed with disease/disorder	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Core	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10509	C10509	Genetic diagnosis established by lab name	Name of the clinical laboratory who performed the genetic testing	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58690	C58690	Syncope history indicator	Indicator of whether the patient has a history of syncope	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10502	C10502	Symptom first experienced text	First symptom of the disease/disorder experienced by the participant/subject	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10510	C10510	Genetic diagnosis established in city name	City where the clinical laboratory that performed the genetic testing is located	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia

447 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.