CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

447 results.
Operations
Selected 22 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10524 Ambulation affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C06452 Neuromuscular scoliosis surgery treat indicator

Indicator of whether the scoliosis has been surgical treated

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C58688 Heart symptomatic arrhythmias ventricular origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C10500 Symptom onset age value

Age when symptoms first experienced

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10508 Genetic diagnosis established date and time

Date (and time if applicable and known) the genetic diagnosis was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58689 Chest discomfort cardiac cause history indicator

Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
447 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.