CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 401 - 425 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C58690 Syncope history indicator

Indicator of whether the patient has a history of syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10510 Genetic diagnosis established in city name

City where the clinical laboratory that performed the genetic testing is located

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10502 Symptom first experienced text

First symptom of the disease/disorder experienced by the participant/subject

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58691 Dizziness near syncope history indicator

Indicator of whether the patient has a history of dizziness or of near syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C58685 Patient ambulatory status

Status indicating whether the patient is ambulatory or not

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10512 Friedreich's ataxia length of GAA repeat allele 1 measurement

The length of the GAA trinucleotide repeat on allele 1 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10698 Walking ability status

Status that reflects the participant's/subject's current ability to walk

Core Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
Displaying 401 - 425 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.