CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 447

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2825-C52586	C52586	Cardiac index value	Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10754	C10754	ECG performed indicator	The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10716	C10716	Canine assistance use indicator	Indicator whether the participant/subject uses canine assistance for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58762	C58762	Heart rate value	Value in beats per minute of the subject/participant's heart rate	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C18778	C18778	ECG ventricular arrhythmia type other text	The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0924-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C17512	C17512	Walking difficulty age need permanent support indicator	Indicator related to age of participant/subject needing permanent support for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58770	C58770	Tissue doppler mitral annulus lateral wall a prime velocity measurement	Measurement of the atrial filling velocity of the tissue doppler lateral wall (a prime)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58778	C58778	Tissue doppler mitral annulus septal medial wall a prime velocity measurement	Measurement of the atrial filling velocity of the tissue doppler mitral annulus septal wall	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0950-C17541	C17541	Tardieu Scale assistive device text	Text identifying an assistive device used by the participant/subject for an immovable joint in a limb	Exploratory	Tardieu Scale	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0943-C11519	C11519	Bowel Control Scale (BWCS) - bowel control loss 4 week scale	Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0943-C11520	C11520	Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale	Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11082	C11082	Delivery extraction indicator	Indicator as to whether or not the participant's/subject's birth was assisted with an extraction method	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17497	C17497	Gait abnormal when began walking indicator	Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11066	C11066	Pregnancy or delivery risk factor type	Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0943-C11521	C11521	Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale	Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C08147	C08147	Data source	Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11083	C11083	Delivery extraction type	Type of extraction used to assist with the delivery of the participant/subject	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11513	C11513	Bladder Control Scale (BLCS) - lost control bladder 4 week scale	The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 326 - 350 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.