CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19057 Diabetes mellitus complications other text

The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C17466 Cardiovascular history arrhythmia atrial fibrillation indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C01012 Physical exam body system result type

Assessment result of each body system examined

Supplemental Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C10603 Cardiac MRI left ventricle mass measurement

Measurement in grams of the mass of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C11996 Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text

Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17474 Cardiovascular history cardiac surgery indicator

Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C58699 Cardiac magnetic resonance left ventricular stroke volume integer

Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C17864 Timed 25-Foot Walk (T25FW) - trial number

Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17483 Psychiatric history clinical anxiety diagnosis indicator

Indicator as to whether the participant/subject has had an anxiety diagnosis

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10679 Paid assistance per day hours number

How many hours in a typical 24-hour day do you have someone with you [paid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10876 Holter exam mean heart rate

Mean heart rate measured during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C18619 Delayed motor milestone specify text

Specify in text the motor milestones that are were delayed

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10705 Walking difficulty age interfered with activities value

Age of participant/subject when difficulty with walking interfered with activities

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
Displaying 301 - 325 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.