CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 715
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time.

Supplemental-Highly Recommended Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C12147 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions shy scale

Scale used to determine how much the patient was bothered by being shy as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12098 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning jerky walk scale

Scale used to determine how much the patient was bothered by walking jerky as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C12058 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking avoidance scale

Scale used to determine how much the patient was bothered by not talking as much or avoiding talking where possible as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C17465 Cardiovascular history abnormal echocardiogram other text

Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C21953 Pediatric Quality of Life Inventory(PedsQL) - Physical health summary score

Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL).

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C12106 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk difficulty slippery uneven surface scale

Scale used to determine how much the patient was bothered by difficulty walking on a slippery or uneven surface as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C58705 Cardiac magnetic resonance right ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C12066 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning bottle opening scale

Scale used to determine how much the patient was limited in his ability to open a bottle as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C17473 Cardiovascular history cardiac surgery date

Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C21962 Pediatric Quality of Life Inventory(PedsQL) - Total score

Total Score as a part of Pediatric Quality of Life Inventory (PedsQL).

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Friedreich's Ataxia Friedreich's Ataxia
C12114 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning stiff legs scale

Scale used to determine how much the patient was bothered by stiff legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12123 Friedreich's Ataxia Impact Scale (FAIS) - isolation people interaction scale

Scale used to determine how much the patient was bothered by difficulties interacting with other people as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C12074 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning telephone use scale

Scale used to determine how much the patient was limited in his ability to use the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C17482 Diabetes mellitus indicator

Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C08529 36-item Short Form Health Survey (SF-36) - Times worn out score

Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Friedreich's Ataxia Friedreich's Ataxia
C12131 Friedreich's Ataxia Impact Scale (FAIS) - mood irritable feeling scale

Scale used to determine how much the patient was bothered by feeling irritable as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C04512 ECG QTc interval

Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C12082 Friedreich's Ataxia Impact Scale (FAIS) - ADL longer time scale

Scale used to determine how much the patient was limited by the time it took to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C17503 Hemoglobin electrophoresis type

Type of hemoglobin that was identified by the electrophoresis test being reported

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
Displaying 26 - 50 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.