CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 715
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time.

Supplemental-Highly Recommended Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C58713 Lab test sample type text

Text field for identifying the type of sample collected

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10699 Sitting ability status

Status that reflects the participant's/subject's current ability to sit

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C01702 Pregnancy test date and time

The date (and time if applicable and known) when the pregnancy test was performed

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10692 Speech level status

Status that reflects the participant's/subject's current level of speech ability

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10700 Bladder control status

Status that reflects the participant's/subject's current level of bladder control

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10693 Swallowing level status

Status that reflects the participant's/subject's current level of swallowing ability

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Friedreich's Ataxia Friedreich's Ataxia
C01522 Height measurement

Measurement of participant's/subject's height.

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10694 Cutting food or use of items functioning level status

Status that reflects the participant's/subject's current level of functioning for cutting food or use of items

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation).

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10695 Dressing level status

Status that reflects the participant's/subject's current level of dressing ability

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature.

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10696 Personal hygiene level status

Status that reflects the participant's/subject's current level of personal hygiene

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10697 Fall rate

Rate that reflects the participant's/subject's current frequency of falling

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10896 Pregnancy test performed indicator

Indicator as to whether or not a pregnancy test was performed on the participant/subject

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.