CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C04509 ECG PR interval

Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C18805 Hospitalization other text

The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries

 Supplemental Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C12079 Friedreich's Ataxia Impact Scale (FAIS) - ADL chair sitting no back sides scale

Scale used to determine how much the patient was limited in his ability to sit in a chair without back and sides as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10723 Echocardiogram completed indicator

Whether an echocardiogram was performed on the participant/subject

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions.

 Supplemental Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C12039 Friedreich's Ataxia Impact Scale (FAIS) - body movement concentrate scale

Scale used to determine how much the patient was bothered by having to concentrate on doing things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C58777 Tissue doppler mitral annulus septal medial wall e prime velocity measurement

Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C17467 Cardiovascular history arrhythmia atrial flutter indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial flutter

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C59007 American Heart Association heart failure stage classification status

Status of the participant's/subject's stage heart failure according to the American Heart Association (AHA) Stage of Heart Failure classifications

 Supplemental Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C12087 Friedreich's Ataxia Impact Scale (FAIS) - ADL car movement scale

Scale used to determine how much the patient was limited in his ability to get in or out of a car as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C12047 Friedreich's Ataxia Impact Scale (FAIS) - body movement shaky hands scale

Scale used to determine how much the patient was bothered by shaky hands as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

 Supplemental Physical Examination False Friedreich's Ataxia Friedreich's Ataxia
C10878 Holter exam arrhythmias identified indicator

The indicator of whether any arrhythmias were identified during the Holter examination.

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C17475 Cardiovascular history cardiac surgery type

Type of cardiac surgery or mechanical intervention the participant/subject underwent

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C11997 Timed 25-Foot Walk (T25FW) - trial 1 not completed reason

Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C12095 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning falling over walking scale

Scale used to determine how much the patient was bothered by falling over when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10742 Echocardiogram degree of mitral regurgitation status

Assessment with echocardiography of whether there is a disorder of the heart in which the mitral valve does not close properly when the heart pumps out blood

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C17506 Cardiac MRI result comment text

Results comments on the cardiac Magnetic Resonance Imaging results

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C12055 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing choking swallowing drinking scale

Scale used to determine how much the patient was bothered by choking when swallowing or drinking as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C17484 Psychiatric history clinical anxiety past year indicator

Indicator as to whether the participant/subject had clinical anxiety within the last year

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Friedreich's Ataxia Friedreich's Ataxia
C12103 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning stair difficulty scale

Scale used to determine how much the patient was bothered by difficulty going up or down stairs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10776 Echocardiogram left ventricle mass z-score value

Calculated z-score for the left ventricle mass (index) measured with echocardiography.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
Displaying 201 - 225 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.