CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C17477 Cardiovascular history congenital heart disease indicator

Indicator as to whether the participant/subject has or had a congenital heart disease

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C58695 Circumstance Cardiac Magnetic Resonance performed reason

Reason for which the cardiac magnetic resonance imaging was performed

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C10518 Scoliosis last assessment date and time

Date (and time if applicable and known) the participant/subject was last assessed for scoliosis

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C17486 Psychiatric history clinical depressive diagnosis indicator

Indicator as to whether the participant/subject had a depressive disorder diagnosis

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10726 Echocardiogram left interventricular septal thickness end diastole measurement

Measurement of left ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58703 Cardiac magnetic resonance left ventricular mass volume ratio value

Value in grams per milliliter of the mass-to-volume ratio of the patient's left ventricle mass and end diastolic volume

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C18618 Neonatal problem other text

Specify in text the problems other than those listed that occurred during the neonatal period

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C17502 Body mass index unit of measure

Unit of measure for body mass index for participant/subject

Supplemental Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C58779 Tissue doppler mitral annulus septal medial wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58692 Holter exam duration day count

Count of whole or partial days elapsed during the Holder exam, up to 14 days

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10701 Walking difficulty level status

Status that reflects the participant's/subject's current level of walking difficulty

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C54234 Echocardiogram right interventricular septal thickness end diastole measurement

Measurement of right ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10756 ECG premature atrial contractions status

Status of absence or presence for an electrocardiographic finding of premature atrial contractions

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10717 Canine assistance use age started value

Age of the participant/subject when he/she began using canine assistance

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58763 Cardiac output value

Value in liters per minute of the cardiac output (CO), calculated as stroke volume (SV) multiplied by heart rate (HR) divided by 1,000

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58684 Circumstance ECG performed reason

Reason the electrocardiogram (ECG) was performed

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C17517 Wheelchair primary mobility means age indicator

Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.