C11083
Delivery extraction type
Type of extraction used to assist with the delivery of the participant/subject
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C05130
Therapy or rehabilitation type
Type of therapy or rehabilitation services received by the participant/subject.
Exploratory
Pediatric Developmental History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11520
Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale
Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS).
Exploratory
Bowel Control Scale (BWCS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C17499
Special education indicator
Indicator as to whether the participant/subject has or had special education
Exploratory
Pediatric Developmental History
False
Friedreich's Ataxia
Friedreich's Ataxia
C18806
Country of residence other text
The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives.
Exploratory
Demographics
False
Friedreich's Ataxia
Friedreich's Ataxia
C11965
Tardieu Scale movement resistance score
The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject.
Exploratory
Tardieu Scale
False
Friedreich's Ataxia
Friedreich's Ataxia
C00001
Gestational age value
Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject.
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11067
Pregnancy or delivery risk factor indicator
Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11134
History data reliability type
Overall assessment of the reliability of the medical/family history data obtained
Exploratory
History Data Source and Reliability
False
Friedreich's Ataxia
Friedreich's Ataxia
C17490
Birth delivery history indicator
Indicator of pregnancy/delivery risk factors
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11513
Bladder Control Scale (BLCS) - lost control bladder 4 week scale
The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)
Exploratory
Bladder Control Scale (BLCS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C11086
School placement type
The description of the type of education the participant/subject receives with details of being with or without assistance.
Exploratory
Pediatric Developmental History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11521
Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale
Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS).
Exploratory
Bowel Control Scale (BWCS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C17500
Specialized therapy service indicator
Indicator as to whether the participant/subject receives or received specialized therapies and services
Exploratory
Pediatric Developmental History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11966
Tardieu Scale muscle reaction angle measurement
The degree of angle for limb position at which muscle reaction or spasticity occurs for a given velocity administered during the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject.
Exploratory
Tardieu Scale
False
Friedreich's Ataxia
Friedreich's Ataxia
C00311
Birth weight report value
Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11078
Delivery mode type
Type of delivery mode of the neonate
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C10720
Walking other assistive device use indicator
Indicator whether the participant/subject uses any other assistive device for walking
Supplemental
Activities of Daily Living and Gait
False
Friedreich's Ataxia
Friedreich's Ataxia
C08536
36-item Short Form Health Survey (SF-36) - Excellent health score
Score of how true or false surveyee perceived the statement: My health is excellent, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Friedreich's Ataxia
Friedreich's Ataxia
C12138
Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions cut off feeling scale
Scale used to determine how much the patient was bothered by feeling cut off as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C02006
Medication prior or concomitant dose
Dose of prior/concomitant medication taken per administration.
Supplemental
Prior and Concomitant Medications
False
Friedreich's Ataxia
Friedreich's Ataxia
C11921
Modified Fatigue Impact Scale (MFIS) - muscle weak score
Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form
Supplemental
Modified Fatigue Impact Scale (MFIS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C21940
Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale
Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Friedreich's Ataxia
Friedreich's Ataxia
C12146
Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions not noticed scale
Scale used to determine how much the patient was bothered by not wanting to be noticed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)
Supplemental
Friedreich's Ataxia Impact Scale (FAIS)
True
Friedreich's Ataxia
Friedreich's Ataxia
C02024
Medication prior or concomitant indication text
Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject.
Supplemental
Prior and Concomitant Medications
False
Friedreich's Ataxia
Friedreich's Ataxia