CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C05130 Therapy or rehabilitation type

Type of therapy or rehabilitation services received by the participant/subject.

 Exploratory Pediatric Developmental History False Friedreich's Ataxia Friedreich's Ataxia
C11520 Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale

Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS).

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C17499 Special education indicator

Indicator as to whether the participant/subject has or had special education

 Exploratory Pediatric Developmental History False Friedreich's Ataxia Friedreich's Ataxia
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives.

 Exploratory Demographics False Friedreich's Ataxia Friedreich's Ataxia
C11965 Tardieu Scale movement resistance score

The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject.

 Exploratory Tardieu Scale False Friedreich's Ataxia Friedreich's Ataxia
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject.

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C17490 Birth delivery history indicator

Indicator of pregnancy/delivery risk factors

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale

The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C11086 School placement type

The description of the type of education the participant/subject receives with details of being with or without assistance.

 Exploratory Pediatric Developmental History False Friedreich's Ataxia Friedreich's Ataxia
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS).

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C17500 Specialized therapy service indicator

Indicator as to whether the participant/subject receives or received specialized therapies and services

 Exploratory Pediatric Developmental History False Friedreich's Ataxia Friedreich's Ataxia
C11966 Tardieu Scale muscle reaction angle measurement

The degree of angle for limb position at which muscle reaction or spasticity occurs for a given velocity administered during the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject.

 Exploratory Tardieu Scale False Friedreich's Ataxia Friedreich's Ataxia
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C11078 Delivery mode type

Type of delivery mode of the neonate

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C08536 36-item Short Form Health Survey (SF-36) - Excellent health score

Score of how true or false surveyee perceived the statement: My health is excellent, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Friedreich's Ataxia Friedreich's Ataxia
C12138 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions cut off feeling scale

Scale used to determine how much the patient was bothered by feeling cut off as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration.

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C21940 Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale

Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C12146 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions not noticed scale

Scale used to determine how much the patient was bothered by not wanting to be noticed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject.

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.