CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 126 - 150 of 715
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11783 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability footwear indicator

Indicator whether participant/subject is barefoot or wearing footwear for standing and walking assessments for Part 3: Neurological Examination E. Upright Stability, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11743 Friedreich's Ataxia Rating Scale (FARS) - daily activities personal hygiene score

Personal hygiene score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11794 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability tandem stance trial 1 duration

Duration in seconds of tandem stance trial 1 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C11751 Friedreich's Ataxia Rating Scale (FARS) - neurological exam bulbar cough score

The score for forcefulness of cough in the bulbar portion of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11802 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability tandem walk score

Score for tandem walk in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11759 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination dysmetria left score

The score for the left finger in the dysmetria (fast nose-finger) test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11810 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 10 second PATA mean count value

Mean count of times participant/subject is able to repeat word "pata" in 10-sec period over 2 trials of the PATA Rate test of the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C11767 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin slide test left score

Score for the left heel in the heel-along-shin slide test in the lower limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C11775 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system muscle weakness left score

Score for left-side muscle weakness in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS).

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C22800 Pregnancy or delivery risk factor other indicator

Indicate whether there are other pregnancy/delivery risk factors.

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C17494 Delay language cognitive milestone indicator

Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C18821 School placement other text

The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance.

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives.

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s).

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C17495 Delay motor milestone indicator

Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C11079 Neonate delivery route type

Route of delivery of the neonate

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11067 Pregnancy or delivery risk factor indicator

Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
Displaying 126 - 150 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.