CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 76 - 100 of 715
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11753 Friedreich's Ataxia Rating Scale (FARS) - neurological exam bulbar total value

The sum of the scores recorded for Part 3: Neurological Examination A. Bulbar, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C11761 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination rapid alternate hand movement left score

The score for the left hand in the rapid alternating movement of hands test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11808 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 10 second PATA trial 1 count

Count of times participant/subject is able to repeat word "pata" in 10-sec period for trial 1 of the PATA Rate test of the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended.

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C11816 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 9 hole peg test left mean duration value

Mean duration in seconds for left-hand trials 1 and 2 of the 9-hole peg test in the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11792 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability feet together stance trial 3 duration

Duration in seconds of feet-together stance trial 3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C58690 Syncope history indicator

Indicator of whether the patient has a history of syncope.

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C11800 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability dominant foot stance trial 3 duration

Duration in seconds of dominant-foot stance trial 3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11770 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin tap test left score

Score for the left heel in the heel-to-shin tap test in the lower limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11778 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system position sense right score

Score for right-side position sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11786 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart trial 1 duration

Duration in seconds of feet-apart stance trial 1 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11746 Friedreich's Ataxia Rating Scale (FARS) - daily activities sitting position quality score

Quality-of-sitting-position score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11754 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger-finger test right score

The score for the right finger in the finger-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions.

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C11762 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger taps right score

The score for the right hand in the finger taps test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C11809 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 10 second PATA trial 2 count

Count of times participant/subject is able to repeat word "pata" in 10-sec period for trial 2 of the PATA Rate test of the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C10512 Friedreich's ataxia length of GAA repeat allele 1 measurement

The length of the GAA trinucleotide repeat on allele 1 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C12031 Friedreich's Ataxia Impact Scale (FAIS) - body movement balance loss scale

Scale used to determine how much the patient was bothered by general loss of balance as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

Core Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C10698 Walking ability status

Status that reflects the participant's/subject's current ability to walk

Core Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C11793 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability feet together stance mean duration score

Score for mean duration of feet-together stance trials 1–3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
Displaying 76 - 100 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.