CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10500 Symptom onset age value

Age when symptoms first experienced

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C10508 Genetic diagnosis established date and time

Date (and time if applicable and known) the genetic diagnosis was established

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered.

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject.

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C11787 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart trial 2 duration

Duration in seconds of feet-apart stance trial 2 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11747 Friedreich's Ataxia Rating Scale (FARS) - daily activities bladder function score

Bladder function score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C58688 Heart symptomatic arrhythmias ventricular origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin.

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C11798 Friedreich's Ataxia Rating Scale (FARS) - neurological exam dominant foot stance trial 1 duration

Duration in seconds of dominant-foot stance trial 1 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Friedreich's Ataxia Friedreich's Ataxia
C11755 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger-finger test left score

The score for the left finger in the finger-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11806 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability total value

The sum of the scores recorded for Part 3: Neurological Examination E. Upright Stability, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C11763 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger taps left score

The score for the left hand in the finger taps test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11814 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 9 hole peg test left trial 1 duration

Duration in seconds for participant/subject to complete left-hand trial 1 of the 9-hole peg test in the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11771 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination total value

The sum of the scores recorded for Part 3: Neurological Examination C. Lower Limb Coordination, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11779 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system position sense left score

Score for left-side position sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11739 Friedreich's Ataxia Rating Scale (FARS) - daily activities speech score

Speech score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11740 Friedreich's Ataxia Rating Scale (FARS) - daily activities swallowing score

Swallowing score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11791 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability feet together stance trial 2 duration

Duration in seconds of feet-together stance trial 2 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11788 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart trial 3 duration

Duration in seconds of feet-apart stance trial 3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11748 Friedreich's Ataxia Rating Scale (FARS) - daily activities total value

The sum of the scores recorded for Part 2: Activities of Daily Living section, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
Displaying 51 - 75 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.