CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58690 Syncope history indicator

Indicator of whether the patient has a history of syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10512 Friedreich's ataxia length of GAA repeat allele 1 measurement

The length of the GAA trinucleotide repeat on allele 1 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C58691 Dizziness near syncope history indicator

Indicator of whether the patient has a history of dizziness or of near syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Core Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11078 Delivery mode type

Type of delivery mode of the neonate

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C17494 Delay language cognitive milestone indicator

Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C18821 School placement other text

The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11964 Tardieu Scale relative velocity rate

The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject

Exploratory Tardieu Scale Friedreich's Ataxia Friedreich's Ataxia
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11079 Neonate delivery route type

Route of delivery of the neonate

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C17495 Delay motor milestone indicator

Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11965 Tardieu Scale movement resistance score

The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject

Exploratory Tardieu Scale Friedreich's Ataxia Friedreich's Ataxia
Displaying 51 - 75 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.