CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11993 Timed 25-Foot Walk (T25FW) - bilateral assistance device type

Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17472 Cardiovascular history arrhythmia ventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C58773 Tissue Doppler lateral tricuspid annual late diastolic velocity measurement

Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C10874 Holter exam maximum heart rate

Maximum heart rate measured during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10517 Scoliosis maximum spine curvature anatomic site

The location of the maximum spine curvature for a participant/subject who has been diagnosed with scoliosis

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10609 Hospitalization reason

Reason why the participant/subject was hospitalized, excluding all surgeries

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58694 Cardiac implant device location anatomic site

Anatomic site of the cardiac implant device

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10703 Walking difficulty age started value

Age when participant/subject first noticed problems with walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10769 Echocardiogram left ventricular end - diastolic septal z score

Calculated z-score for the left ventricular end - diastolic septal thickness (LVSTd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10711 Walking cane use age started value

Age of the participant/subject when he/she began using a cane for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58683 Echocardiogram performed circumstance indicator

Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10758 ECG WPW syndrome status

Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58765 Echocardiogram left ventricle mass index value

Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C01702 Pregnancy test date and time

The date (and time if applicable and known) when the pregnancy test was performed

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10696 Personal hygiene level status

Status that reflects the participant's/subject's current level of personal hygiene

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
Displaying 401 - 425 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.