CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 376 - 400 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C11995 Timed 25-Foot Walk (T25FW) - trial 1 duration

Duration , in seconds and to the nearest tenth of a second, of the participant/subject's walking 25 feet for the trial being recorded, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C18619 Delayed motor milestone specify text

Specify in text the motor milestones that are were delayed

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C58698 Cardiac magnetic resonance left ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C17863 Timed 25-Foot Walk (T25FW) - trial not complete reason text

Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurement of the left atrial antero-posterior dimension obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10875 Holter exam minimum heart rate

Minimum heart rate measured during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18805 Hospitalization other text

The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10704 Walking difficulty age others noticed value

Age when other people first noticed the participant's/subject's gait disturbances

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10770 Echocardiogram left ventricular end diastolic internal dimension z score

Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C17465 Cardiovascular history abnormal echocardiogram other text

Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10712 Walking use 2 cane crutch indicator

Indicator whether the participant/subject uses two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58758 Echocardiogram performed circumstance other reason

Specific other reason describing the circumstance under which the echocardiogram as performed

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10759 ECG premature ventricular contractions status

Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C17473 Cardiovascular history cardiac surgery date

Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58766 Early diastolic transmitral flow velocity measurement

Measurement in centimeters per second of the early diastolic transmitral flow velocity (E)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C17482 Diabetes mellitus indicator

Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C58774 Tissue doppler lateral tricuspid annulus annual systolic peak velocity measurement

Measurement of the annual systolic peak velocity of the tissue doppler lateral tricuspid annulus (Rv s')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
Displaying 376 - 400 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.