CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58772 Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement

Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C17466 Cardiovascular history arrhythmia atrial fibrillation indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10873 Holter exam start date and time

Date (and time, if applicable and known) the Holter examination began

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10516 Scoliosis maximum spine curvature measurement

The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C17474 Cardiovascular history cardiac surgery indicator

Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10607 Hospitalization past year count

Count of all hospitalizations the participant/subject had within the past year

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58693 Cardiac implant device place indicator

Indicator of whether a cardiac implant device was placed

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10526 Assistive walking device started use age value

Age when the participant/subject began using the assistive walking device

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10702 Walking own unable reason

Reason why the participant/subject is unable to walk on his/her own

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10768 Echocardiogram left ventricular end-diastolic posterior wall thickness z score

Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C17483 Psychiatric history clinical anxiety diagnosis indicator

Indicator as to whether the participant/subject has had an anxiety diagnosis

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10679 Paid assistance per day hours number

How many hours in a typical 24-hour day do you have someone with you [paid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10710 Walking 1 cane use indicator

Indicator whether the participant/subject uses one cane for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C54235 Echocardiogram right ventricular posterior wall thickness end diastole measurement

Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11993 Timed 25-Foot Walk (T25FW) - bilateral assistance device type

Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C12002 Timed 25-Foot Walk (T25FW) - more than two attempts text

Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C10728 Echocardiogram left ventricular internal dimension end systole measurement

Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58705 Cardiac magnetic resonance right ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
Displaying 351 - 375 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.