CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10769 Echocardiogram left ventricular end - diastolic septal z score

Calculated z-score for the left ventricular end - diastolic septal thickness (LVSTd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10711 Walking cane use age started value

Age of the participant/subject when he/she began using a cane for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58683 Echocardiogram performed circumstance indicator

Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10758 ECG WPW syndrome status

Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58765 Echocardiogram left ventricle mass index value

Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C58698 Cardiac magnetic resonance left ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C17863 Timed 25-Foot Walk (T25FW) - trial not complete reason text

Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17482 Diabetes mellitus indicator

Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurement of the left atrial antero-posterior dimension obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58706 Cardiac magnetic resonance right ventricular stroke volume integer

Integer for the value in milliliters of the stroke volume of the right ventricle (RVSV) as determined through cardiac magnetic resonance

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10740 Echocardiogram left ventricle ejection fraction measurement

Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04505 ECG left ventricular hypertrophy status

Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C17505 Urine nitrite result

Result of the urine nitrite test being reported

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C17465 Cardiovascular history abnormal echocardiogram other text

Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
Displaying 276 - 300 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.