CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 715
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C11756 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination nose-finger test right score

The score for the right finger in the nose-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.

Core Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C11764 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination total value

The sum of the scores recorded for Part 3: Neurological Examination B. Upper Limb Coordination, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11811 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 9 hole peg test right trial 1 duration

Duration in seconds for participant/subject to complete right-hand trial 1 of the 9-hole peg test in the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject.

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58685 Patient ambulatory status

Status indicating whether the patient is ambulatory or not.

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C11795 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability tandem stance trial 2 duration

Duration in seconds of tandem stance trial 2 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C11803 Friedreich's Ataxia Rating Scale (FARS) - neurological exam gait device text

Text description of any device used for assistance during gait test in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11773 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system muscle atrophy left score

Score for left-side muscle atrophy in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11781 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex left score

Score for left-side deep tendon reflex in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11741 Friedreich's Ataxia Rating Scale (FARS) - daily activities cutting handling utensils score

Cutting-food-and-handling-utensils score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11789 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart mean duration score

Score for mean duration of feet-apart stance trials 1–3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11749 Friedreich's Ataxia Rating Scale (FARS) - neurological exam bulbar facial atrophy fasciculation myoclonus weakness score

The score for severity of facial atrophy, fasciculation, action myoclonus, and weakness in the bulbar portion of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C10524 Ambulation affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11757 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination nose-finger test left score

The score for the left finger in the nose-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11765 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin slide test position indicator

Indicator of the participant/subject's position while performing heel-along-shin slide test, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C06452 Neuromuscular scoliosis surgery treat indicator

Indicator of whether the scoliosis has been surgical treated.

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11812 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 9 hole peg test right trial 2 duration

Duration in seconds for participant/subject to complete right-hand trial 2 of the 9-hole peg test in the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58686 Heart palpitation history indicator

Indicator of whether the patient has a history of heart palpitations.

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
Displaying 26 - 50 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.