CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11778 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system position sense right score

Score for right-side position sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11809 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 10 second PATA trial 2 count

Count of times participant/subject is able to repeat word "pata" in 10-sec period for trial 2 of the PATA Rate test of the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11786 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart trial 1 duration

Duration in seconds of feet-apart stance trial 1 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11746 Friedreich's Ataxia Rating Scale (FARS) - daily activities sitting position quality score

Quality-of-sitting-position score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11754 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger-finger test right score

The score for the right finger in the finger-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11762 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger taps right score

The score for the right hand in the finger taps test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11793 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability feet together stance mean duration score

Score for mean duration of feet-together stance trials 1–3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C11770 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin tap test left score

Score for the left heel in the heel-to-shin tap test in the lower limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C58691 Dizziness near syncope history indicator

Indicator of whether the patient has a history of dizziness or of near syncope

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C11801 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability dominant foot stance mean duration score

Score for mean duration of dominant-foot stance trials 1–3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.

 Core Physical Examination False Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

 Core Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C11779 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system position sense left score

Score for left-side position sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11739 Friedreich's Ataxia Rating Scale (FARS) - daily activities speech score

Speech score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11810 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 10 second PATA mean count value

Mean count of times participant/subject is able to repeat word "pata" in 10-sec period over 2 trials of the PATA Rate test of the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C06452 Neuromuscular scoliosis surgery treat indicator

Indicator of whether the scoliosis has been surgical treated.

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11787 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart trial 2 duration

Duration in seconds of feet-apart stance trial 2 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11747 Friedreich's Ataxia Rating Scale (FARS) - daily activities bladder function score

Bladder function score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended.

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C11755 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination finger-finger test left score

The score for the left finger in the finger-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.