CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58686 Heart palpitation history indicator

Indicator of whether the patient has a history of heart palpitations

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10512 Friedreich's ataxia length of GAA repeat allele 1 measurement

The length of the GAA trinucleotide repeat on allele 1 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C58709 Lab test abnormality result too high too low indicator

Indication of lab panel test result, either too high or too low

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58687 Heart symptomatic arrhythmias atrial origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10513 Friedreich's ataxia length of GAA repeat allele 2 measurement

Length of the GAA repeat on allele 2 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10522 Speech affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's speech

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C01706 Lab test result text

Result of the laboratory test

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58688 Heart symptomatic arrhythmias ventricular origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.