CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10502 Symptom first experienced text

First symptom of the disease/disorder experienced by the participant/subject

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11776 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system vibratory sense right score

Score for right-side vibratory sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10510 Genetic diagnosis established in city name

City where the clinical laboratory that performed the genetic testing is located

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11784 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability AFO use indicator

Indicator whether participant/subject is using an AFO for standing and walking assessments for Part 3: Neurological Examination E. Upright Stability, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11744 Friedreich's Ataxia Rating Scale (FARS) - daily activities falling score

Falling score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11752 Friedreich's Ataxia Rating Scale (FARS) - neurological exam bulbar spontaneous speech score

The score for understandability of spontaneous speech in the bulbar portion of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C11760 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination rapid alternate hand movement right score

The score for the right hand in the rapid alternating movement of hands test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11768 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin tap test position indicator

Indicator of the participant/subject's position while performing heel-to-shin tap test in the lower limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11815 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 9 hole peg test left trial 2 duration

Duration in seconds for participant/subject to complete left-hand trial 2 of the 9-hole peg test in the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C11791 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability feet together stance trial 2 duration

Duration in seconds of feet-together stance trial 2 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C58689 Chest discomfort cardiac cause history indicator

Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C11799 Friedreich's Ataxia Rating Scale (FARS) - neurological exam dominant foot stance trial 2 duration

Duration in seconds of dominant-foot stance trial 2 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11807 Friedreich's Ataxia Rating Scale (FARS) - neurological exam total value

The sum of the scores recorded for Part 3: Neurological Examination, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

 Core Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C11777 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system vibratory sense left score

Score for left-side vibratory sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11785 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability sitting posture score

Score for sitting posture in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11745 Friedreich's Ataxia Rating Scale (FARS) - daily activities walking score

Walking score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11753 Friedreich's Ataxia Rating Scale (FARS) - neurological exam bulbar total value

The sum of the scores recorded for Part 3: Neurological Examination A. Bulbar, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C11761 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination rapid alternate hand movement left score

The score for the left hand in the rapid alternating movement of hands test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11769 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin tap test right score

Score for the right heel in the heel-to-shin tap test in the lower limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.