CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10513 Friedreich's ataxia length of GAA repeat allele 2 measurement

Length of the GAA repeat on allele 2 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10512 Friedreich's ataxia length of GAA repeat allele 1 measurement

The length of the GAA trinucleotide repeat on allele 1 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10523 Foot surgery indicator

The indicator of whether the participant/subject has had foot surgery

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10564 Fasting prior to sample collection indicator

Indicator of whether or not the participant/subject was on fasting prior to blood sample collection

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C10697 Fall rate

Rate that reflects the participant's/subject's current frequency of falling

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C00204 Employment current status

Status of participant/subject's current employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Friedreich's Ataxia Friedreich's Ataxia
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10733 Echocardiogram right ventricular systolic dysfunction status

Status of right ventricular systolic dysfunction on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C54235 Echocardiogram right ventricle PWTd measurement

Right ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C54234 Echocardiogram right ventricle IVSTd measurement

Right ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10731 Echocardiogram right atrial enlargement status

Status of absence or presence of right atrial enlargement on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
Displaying 251 - 275 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.