C00707
Alcohol consume six or more drinks frequency
The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00705
Alcohol current use indicator
Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00704
Alcohol drinking day average drinks consumed range
The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00706
Alcohol prior use indicator
Indicator of the participant's/subject's alcohol consumption prior to the past 12 months
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00730
Alcohol use frequency
The frequency of consumption of alcohol by the participant
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00708
Alcohol use related to hospitalization indicator
Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00702
Alcohol use started age value
Age in years when participant/subject started ingesting alcoholic beverages, including social drinking
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00700
Alcohol use stopped age value
Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C10524
Ambulation affected by disease indicator
The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability
Core
Medical History of Friedreich's Ataxia
False
Friedreich's Ataxia
Friedreich's Ataxia
C59007
American Heart Association heart failure stage classification status
Status of the participant's/subject's stage heart failure according to the American Heart Association (AHA) Stage of Heart Failure classifications
Supplemental
Cardiac End Points
False
Friedreich's Ataxia
Friedreich's Ataxia
C00724
APGAR five minute score
Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00723
APGAR ten minute score
Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C10526
Assistive walking device started use age value
Age when the participant/subject began using the assistive walking device
Supplemental
Medical History of Friedreich's Ataxia
False
Friedreich's Ataxia
Friedreich's Ataxia
C17493
Attention deficit disorder attention deficit hyperactivity disorder indicator
Indicator as to whether the participant/subject has or had attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD)
Exploratory
Pediatric Developmental History
False
Friedreich's Ataxia
Friedreich's Ataxia
C00714
Behavioral history assessment date and time
Date (and time, if applicable and known) the participant/subject behavioral history was taken
Supplemental
Behavioral History
False
Friedreich's Ataxia
Friedreich's Ataxia
C58776
Biplane left atrial volume measurement
Measurement of the biplane left atrial volume (LAV)
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
Demographics
False
Friedreich's Ataxia
Friedreich's Ataxia
C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
General Core
False
Friedreich's Ataxia
Friedreich's Ataxia
C17490
Birth delivery history indicator
Indicator of pregnancy/delivery risk factors
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C17491
Birth delivery history type
Type of pregnancy complication the participant's/subject's mother may have experienced in her lifetime
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C58676
Birth sex assigned type
Self-reported phenotypic sex of participant/subject, assigned at birth
Core
General Core
False
Friedreich's Ataxia
Friedreich's Ataxia
C58780
Birth sex assigned type other text
The free-text field related to 'Birth sex assigned type', specifying other text
Supplemental
General Core
False
Friedreich's Ataxia
Friedreich's Ataxia
C59019
Birth weight measurement
Measurement in kilograms of the weight of a neonate at birth
Exploratory
Prenatal and Perinatal History
False
Friedreich's Ataxia
Friedreich's Ataxia
C11514
Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale
The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)
Exploratory
Bladder Control Scale (BLCS)
False
Friedreich's Ataxia
Friedreich's Ataxia
C11515
Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale
The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)
Exploratory
Bladder Control Scale (BLCS)
False
Friedreich's Ataxia
Friedreich's Ataxia