CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11919 Modified Fatigue Impact Scale (MFIS) - difficult make decision score

Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11918 Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11916 Modified Fatigue Impact Scale (MFIS) - less motivate social activity score

Scale for having been less motivated to participate in social activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11910 Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score

Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11522 Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale

Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11520 Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale

Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11519 Bowel Control Scale (BWCS) - bowel control loss 4 week scale

Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C11514 Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale

The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale

The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.