CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10701 Walking difficulty level status

Status that reflects the participant's/subject's current level of walking difficulty

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10700 Bladder control status

Status that reflects the participant's/subject's current level of bladder control

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10699 Sitting ability status

Status that reflects the participant's/subject's current ability to sit

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10698 Walking ability status

Status that reflects the participant's/subject's current ability to walk

 Core Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10697 Fall rate

Rate that reflects the participant's/subject's current frequency of falling

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10696 Personal hygiene level status

Status that reflects the participant's/subject's current level of personal hygiene

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10695 Dressing level status

Status that reflects the participant's/subject's current level of dressing ability

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10694 Cutting food or use of items functioning level status

Status that reflects the participant's/subject's current level of functioning for cutting food or use of items

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10693 Swallowing level status

Status that reflects the participant's/subject's current level of swallowing ability

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10692 Speech level status

Status that reflects the participant's/subject's current level of speech ability

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10681 In-home assistance for remembering, decision making, or judgment duration

Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C10680 Unpaid assistance per day hours number

How many hours in a typical 24-hour day do you have someone with you [unpaid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C10679 Paid assistance per day hours number

How many hours in a typical 24-hour day do you have someone with you [paid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C10678 Employment full-time status

Status of participant/subject's current full-time employment

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

 Exploratory Demographics False Friedreich's Ataxia Friedreich's Ataxia
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Exploratory Demographics False Friedreich's Ataxia Friedreich's Ataxia
C10609 Hospitalization reason

Reason why the participant/subject was hospitalized, excluding all surgeries

 Supplemental Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C10607 Hospitalization past year count

Count of all hospitalizations the participant/subject had within the past year

 Supplemental Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C10605 Cardiac MRI hyper - enhancement by LGE indicator

Whether myocardial hyper-enhancement was found by late gadolinium enhancement (LGE) by the cardiac Magnetic Resonance Imaging

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C10604 Cardiac MRI relative wall thickness measurement

The relative wall thickness measured by cardiac Magnetic Resonance Imaging

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C10603 Cardiac MRI left ventricle mass measurement

Measurement in grams of the mass of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C10602 Cardiac MRI ejection fraction measurement

Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

 Supplemental Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

 Supplemental Pregnancy History False Friedreich's Ataxia Friedreich's Ataxia
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

 Supplemental Pregnancy History False Friedreich's Ataxia Friedreich's Ataxia
Displaying 276 - 300 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.