CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 447

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0940-C10719	C10719	Wheelchair use age started value	Age of the participant/subject when he/she began using a wheelchair	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58765	C58765	Echocardiogram left ventricle mass index value	Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0924-C10559	C10559	Spontaneous miscarriage count	Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters	Supplemental	Pregnancy History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58773	C58773	Tissue Doppler lateral tricuspid annual late diastolic velocity measurement	Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10874	C10874	Holter exam maximum heart rate	Maximum heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10517	C10517	Scoliosis maximum spine curvature anatomic site	The location of the maximum spine curvature for a participant/subject who has been diagnosed with scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10740	C10740	Echocardiogram left ventricle ejection fraction measurement	Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04505	C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11913	C11913	Modified Fatigue Impact Scale (MFIS) - forgetful score	Scale for having been forgetful as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10541	C10541	Diabetes treatment type	Type of treatment the participant/subject is receiving or has received for diabetes mellitus	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11921	C11921	Modified Fatigue Impact Scale (MFIS) - muscle weak score	Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C17505	C17505	Urine nitrite result	Result of the urine nitrite test being reported	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17465	C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11929	C11929	Modified Fatigue Impact Scale (MFIS) - rest more often longer score	Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10602	C10602	Cardiac MRI ejection fraction measurement	Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11995	C11995	Timed 25-Foot Walk (T25FW) - trial 1 duration	Duration , in seconds and to the nearest tenth of a second, of the participant/subject's walking 25 feet for the trial being recorded, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17827	C17827	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale	Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58698	C58698	Cardiac magnetic resonance left ventricular end systolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C17863	C17863	Timed 25-Foot Walk (T25FW) - trial not complete reason text	Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17482	C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 151 - 175 of 447

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.