CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 401 - 425 of 447

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0920-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58708	C58708	Cardiac magnetic resonance native T1 relaxation time duration	Duration in milliseconds required for native T1 relaxation as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01704	C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17488	C17488	Psychiatric history psychotic diagnosis type	Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04507	C04507	ECG complete bundle branch block status	Status of complete bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11915	C11915	Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score	Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01713	C01713	Lab test result unit of measure UCUM code	Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11923	C11923	Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score	Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C59007	C59007	American Heart Association heart failure stage classification status	Status of the participant's/subject's stage heart failure according to the American Heart Association (AHA) Stage of Heart Failure classifications	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17463	C17463	Cardiovascular history abnormal echocardiogram indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11931	C11931	Modified Fatigue Impact Scale (MFIS) - cognitive score	Sum of MFIS Cognitive items (range: 0-40)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10604	C10604	Cardiac MRI relative wall thickness measurement	The relative wall thickness measured by cardiac Magnetic Resonance Imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11997	C11997	Timed 25-Foot Walk (T25FW) - trial 1 not completed reason	Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17471	C17471	Cardiovascular history arrhythmia supraventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10723	C10723	Echocardiogram completed indicator	Whether an echocardiogram was performed on the participant/subject	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58700	C58700	Cardiac magnetic resonance heart rate integer	Integer for the value in beats per minute of the patient's heart rate as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01714	C01714	Pregnancy test not applicable reason	Reason that performance of a pregnancy test was not applicable to the participant/subject	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10699	C10699	Sitting ability status	Status that reflects the participant's/subject's current ability to sit	Supplemental-Highly Recommended	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 401 - 425 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.