CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 447

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0921-C17465	C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17826	C17826	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale	Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58697	C58697	Cardiac magnetic resonance left ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C12002	C12002	Timed 25-Foot Walk (T25FW) - more than two attempts text	Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58705	C58705	Cardiac magnetic resonance right ventricular end systolic volume integer	Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17482	C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10738	C10738	Echocardiogram peak systolic pressure gradient measurement	Peak systolic pressure gradient measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C08147	C08147	Data source	Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11083	C11083	Delivery extraction type	Type of extraction used to assist with the delivery of the participant/subject	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11513	C11513	Bladder Control Scale (BLCS) - lost control bladder 4 week scale	The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17498	C17498	Hand preference before 12 month age indicator	Indicator as to whether the participant/subject had a hand preference before 12 months of age	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0943-C11521	C11521	Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale	Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11078	C11078	Delivery mode type	Type of delivery mode of the neonate	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C18806	C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C11133	C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C17490	C17490	Birth delivery history indicator	Indicator of pregnancy/delivery risk factors	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11514	C11514	Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale	The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17499	C17499	Special education indicator	Indicator as to whether the participant/subject has or had special education	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0943-C11522	C11522	Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale	Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 326 - 350 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.