CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0931-C01710	C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C18805	C18805	Hospitalization other text	The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C18618	C18618	Neonatal problem other text	Specify in text the problems other than those listed that occurred during the neonatal period	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10704	C10704	Walking difficulty age others noticed value	Age when other people first noticed the participant's/subject's gait disturbances	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10770	C10770	Echocardiogram left ventricular end diastolic internal dimension z score	Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10712	C10712	Walking use 2 cane crutch indicator	Indicator whether the participant/subject uses two canes or crutches for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58758	C58758	Echocardiogram performed circumstance other reason	Specific other reason describing the circumstance under which the echocardiogram as performed	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10759	C10759	ECG premature ventricular contractions status	Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs)	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10720	C10720	Walking other assistive device use indicator	Indicator whether the participant/subject uses any other assistive device for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58766	C58766	Early diastolic transmitral flow velocity measurement	Measurement in centimeters per second of the early diastolic transmitral flow velocity (E)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58774	C58774	Tissue doppler lateral tricuspid annulus annual systolic peak velocity measurement	Measurement of the annual systolic peak velocity of the tissue doppler lateral tricuspid annulus (Rv s')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10875	C10875	Holter exam minimum heart rate	Minimum heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10518	C10518	Scoliosis last assessment date and time	Date (and time if applicable and known) the participant/subject was last assessed for scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10543	C10543	Cancer head or neck radiation treatment indicator	Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11922	C11922	Modified Fatigue Impact Scale (MFIS) - physical uncomfort score	Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17466	C17466	Cardiovascular history arrhythmia atrial fibrillation indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11930	C11930	Modified Fatigue Impact Scale (MFIS) - physical sub score	Sum of MFIS Physical items (range: 0-36)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10603	C10603	Cardiac MRI left ventricle mass measurement	Measurement in grams of the mass of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11996	C11996	Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text	Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.