CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0938-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11913	C11913	Modified Fatigue Impact Scale (MFIS) - forgetful score	Scale for having been forgetful as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01710	C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10541	C10541	Diabetes treatment type	Type of treatment the participant/subject is receiving or has received for diabetes mellitus	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11921	C11921	Modified Fatigue Impact Scale (MFIS) - muscle weak score	Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11067	C11067	Pregnancy or delivery risk factor indicator	Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C17505	C17505	Urine nitrite result	Result of the urine nitrite test being reported	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17465	C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11929	C11929	Modified Fatigue Impact Scale (MFIS) - rest more often longer score	Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11995	C11995	Timed 25-Foot Walk (T25FW) - trial 1 duration	Duration , in seconds and to the nearest tenth of a second, of the participant/subject's walking 25 feet for the trial being recorded, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C10677	C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Exploratory	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17827	C17827	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale	Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C17863	C17863	Timed 25-Foot Walk (T25FW) - trial not complete reason text	Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17482	C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01702	C01702	Pregnancy test date and time	The date (and time if applicable and known) when the pregnancy test was performed	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C18805	C18805	Hospitalization other text	The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10704	C10704	Walking difficulty age others noticed value	Age when other people first noticed the participant's/subject's gait disturbances	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10770	C10770	Echocardiogram left ventricular end diastolic internal dimension z score	Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10712	C10712	Walking use 2 cane crutch indicator	Indicator whether the participant/subject uses two canes or crutches for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.