CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0925-C17494	C17494	Delay language cognitive milestone indicator	Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C17511	C17511	Walking difficulty age need intermittent support indicator	Indicator used when participant/subject age when needing intermittent support for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C19078	C19078	Cardiovascular history cardiac surgery other text	The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17460	C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17468	C17468	Cardiovascular history arrhythmia bradycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of bradycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17476	C17476	Cardiovascular history condition indicator	Indicator as to whether the participant/subject has or had a cardiac condition or complication	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17485	C17485	Psychiatric history clinical depression past year indicator	Indicator as to whether the participant/subject has had clinical depression within the last year	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17495	C17495	Delay motor milestone indicator	Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C17512	C17512	Walking difficulty age need permanent support indicator	Indicator related to age of participant/subject needing permanent support for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C17502	C17502	Body mass index unit of measure	Unit of measure for body mass index for participant/subject	Supplemental	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17461	C17461	Cancer history type text	Text description of the type of cancer the participant/subject was or is diagnosed with	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17469	C17469	Cardiovascular history arrhythmia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17477	C17477	Cardiovascular history congenital heart disease indicator	Indicator as to whether the participant/subject has or had a congenital heart disease	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17486	C17486	Psychiatric history clinical depressive diagnosis indicator	Indicator as to whether the participant/subject had a depressive disorder diagnosis	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0950-C17541	C17541	Tardieu Scale assistive device text	Text identifying an assistive device used by the participant/subject for an immovable joint in a limb	Exploratory	Tardieu Scale	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17462	C17462	Cardiovascular history abnormal echocardiogram decreased left ventricular function indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting decreased left ventricular (LV) function	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17470	C17470	Cardiovascular history arrhythmia other text	Text description of any cardiac arrhythmia the participant/subject has or had in a form other than atrial fibrillation, atrial flutter, supraventricular tachycardia, ventricular tachycardia, or bradycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17478	C17478	Cardiovascular history heart failure indicator	Indicator as to whether the participant/subject has ever experienced heart failure	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17487	C17487	Psychiatric history psychotic diagnosis text	Text identification of any psychotic disorder diagnosis made for the participant/patient	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17497	C17497	Gait abnormal when began walking indicator	Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17463	C17463	Cardiovascular history abnormal echocardiogram indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C17503	C17503	Hemoglobin electrophoresis type	Type of hemoglobin that was identified by the electrophoresis test being reported	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17471	C17471	Cardiovascular history arrhythmia supraventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17479	C17479	Cardiovascular history ischemia heart disease indicator	Indicator as to whether the participant/subject has or had ischemia heart disease	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 126 - 150 of 447

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.