CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 376 - 400 of 447

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0923-C22800	C22800	Pregnancy or delivery risk factor other indicator	Indicate whether there are other pregnancy/delivery risk factors	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17494	C17494	Delay language cognitive milestone indicator	Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11517	C11517	Bladder Control Scale (BLCS) - scores sum value	Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C18821	C18821	School placement other text	The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0950-C11965	C11965	Tardieu Scale movement resistance score	The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject	Exploratory	Tardieu Scale	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17495	C17495	Delay motor milestone indicator	Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0943-C11518	C11518	Bowel Control Scale (BWCS) - constipation 4 week scale	Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0950-C11966	C11966	Tardieu Scale muscle reaction angle measurement	The degree of angle for limb position at which muscle reaction or spasticity occurs for a given velocity administered during the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject	Exploratory	Tardieu Scale	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11080	C11080	Delivery modality type	Type of modality of the participant/subject's intrauterine orientation at delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C18824	C18824	History data not obtained other text	The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01707	C01707	Lab test abnormality significance type	Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58687	C58687	Heart symptomatic arrhythmias atrial origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C58711	C58711	GAA repeat expansion mutation size text	Text field for identifying the GAA repeat-expansion mutation	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10507	C10507	Genetic diagnosis confirmation type	Manner in which genetic diagnosis was confirmed	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10524	C10524	Ambulation affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 376 - 400 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.