CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C17461 Cancer history type text

Text description of the type of cancer the participant/subject was or is diagnosed with

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11990 Timed 25-Foot Walk (T25FW) - ankle foot orthosis status

Indicator whether the participant/subject wore an ankle-foot orthosis (AFO) during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C17469 Cardiovascular history arrhythmia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

 Supplemental Physical Examination False Friedreich's Ataxia Friedreich's Ataxia
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

 Supplemental Demographics False Friedreich's Ataxia Friedreich's Ataxia
C10556 Pregnant ever indicator

Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term

 Supplemental Pregnancy History False Friedreich's Ataxia Friedreich's Ataxia
C17512 Walking difficulty age need permanent support indicator

Indicator related to age of participant/subject needing permanent support for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C58770 Tissue doppler mitral annulus lateral wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler lateral wall (a prime)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58778 Tissue doppler mitral annulus septal medial wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C10879 Holter exam arrhythmias identified type

Type of arrhythmias identified during the Holter examination

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C10523 Foot surgery indicator

The indicator of whether the participant/subject has had foot surgery

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C52586 Cardiac index value

Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C10754 ECG performed indicator

The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C10716 Canine assistance use indicator

Indicator whether the participant/subject uses canine assistance for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C58762 Heart rate value

Value in beats per minute of the subject/participant's heart rate

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C18778 ECG ventricular arrhythmia type other text

The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C58695 Circumstance Cardiac Magnetic Resonance performed reason

Reason for which the cardiac magnetic resonance imaging was performed

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
Displaying 276 - 300 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.