CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 447

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2746-C11933	C11933	Modified Fatigue Impact Scale (MFIS) - total score	Total MFIS score (range: 0-84)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11999	C11999	Timed 25-Foot Walk (T25FW) - trial 2 circumstances affecting performance text	Record in text any circumstances that affected the patient's performance for a completed Trial 2, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10725	C10725	Echocardiogram left ventricular posterior wall thickness end diastole measurement	Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58696	C58696	Cardiac magnetic resonance left ventricular mass index integer	Integer representing the cardiac magnetic resonance imaging left ventricular mass index	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10879	C10879	Holter exam arrhythmias identified type	Type of arrhythmias identified during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17476	C17476	Cardiovascular history condition indicator	Indicator as to whether the participant/subject has or had a cardiac condition or complication	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10516	C10516	Scoliosis maximum spine curvature measurement	The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10708	C10708	Wheelchair primary mobility means age value	Age of participant/subject when they first began to use a wheelchair as their primary means of mobility	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17485	C17485	Psychiatric history clinical depression past year indicator	Indicator as to whether the participant/subject has had clinical depression within the last year	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C52586	C52586	Cardiac index value	Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10754	C10754	ECG performed indicator	The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C10681	C10681	In-home assistance for remembering, decision making, or judgment duration	Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10526	C10526	Assistive walking device started use age value	Age when the participant/subject began using the assistive walking device	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10716	C10716	Canine assistance use indicator	Indicator whether the participant/subject uses canine assistance for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C19078	C19078	Cardiovascular history cardiac surgery other text	The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58762	C58762	Heart rate value	Value in beats per minute of the subject/participant's heart rate	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C18778	C18778	ECG ventricular arrhythmia type other text	The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C17512	C17512	Walking difficulty age need permanent support indicator	Indicator related to age of participant/subject needing permanent support for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58770	C58770	Tissue doppler mitral annulus lateral wall a prime velocity measurement	Measurement of the atrial filling velocity of the tissue doppler lateral wall (a prime)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 301 - 325 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.