CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 401 - 425 of 451

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2130-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C11100	C11100	Pulmonary function test position type	Participant's/subject's position for the pulmonary function assessment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12307	C12307	Ulna length measure tool name	Instrument used to measure ulna length	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12316	C12316	Pulmonary function forced vital capacity large value range indicator	Whether the two largest values of forced vital capacity (FVC) are within 10% of each other	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C04508	C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12317	C12317	Pulmonary function forced vital capacity early termination indicator	Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C04501	C04501	ECG assessment date and time	Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12318	C12318	Pulmonary function forced vital capacity peak flow indicator	Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12298	C12298	Pulmonary function test not done reason	Reason the pulmonary function test was attempted but not completed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12310	C12310	Pulmonary function complete exhalation indicator	Whether the complete amount of air was exhaled from the participant/subject	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C04502	C04502	ECG global result type	Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12516	C12516	Pulmonary function lung function measurement	Numeric result of index function of the lungs tested	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12301	C12301	Pulmonary Function Test seat position type	The seated position of the participant/subject during the assessment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12311	C12311	Pulmonary function index of lung function type	The different functions of the lungs tested during pulmonary function test (PFT)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C04503	C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

Displaying 401 - 425 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.