CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 451

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1907-C01702	C01702	Pregnancy test date and time	The date (and time if applicable and known) when the pregnancy test was performed	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1899-C12385	C12385	Respiratory tracheostomy tube cuffed indicator	Indicator of whether or not the tracheostomy tube that the participant/subject uses has cuffs	Supplemental	Respiratory Interventions	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16065	C16065	Congenital anomaly child indicator	Indicates whether there were congenital anomalies in the participant's/subject's child	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1899-C12393	C12393	Respiratory positive end-expiratory pressure expiratory positive airway pressure value	Value of the positive end-expiratory pressure (PEEP)/expiratory positive airway pressure (EPAP)	Supplemental	Respiratory Interventions	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1891-C12172	C12172	Dual X-ray absorptiometry beam technique type	The type of beam technique used for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual X-Ray Absorptiometry (DXA)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17997	C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C11080	C11080	Delivery modality type	Type of modality of the participant/subject's intrauterine orientation at delivery	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1899-C12401	C12401	Respiratory oxygen flow rate	The flow rate value of supplemental oxygen	Supplemental	Respiratory Interventions	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12308	C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1891-C12193	C12193	Dual X-ray absorptiometry appendicular lean soft tissue value	The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)	Supplemental	Dual X-Ray Absorptiometry (DXA)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16023	C16023	Pregnancy prior history births pre-term count	Count of the total number of pregnancies the participant/subject carried for less than a full term (	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1899-C18849	C18849	Respiratory support negative pressure device delivery method other text	The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12317	C12317	Pulmonary function forced vital capacity early termination indicator	Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16044	C16044	Delivery cesarean section reason	Reason for the Cesarean section	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12447	C12447	Polysomnography blood oxygen saturation drop hour awake count	Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1038-C12423	C12423	Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value	The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg	Supplemental	Measures of Gas Exchange	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C12832	C12832	ECG atrioventricular block second degree status	Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1838-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Supplemental	Grip Strength	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1829-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12455	C12455	Polysomnography transcutaneous carbon dioxide measurement grade	Grade of the transcutaneous CO2 (TcCO2) measurements being reported	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1845-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1907-C01709	C01709	Lab test result status	Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12463	C12463	Polysomnography heart rate REM sleep value	Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.