CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12404 Respiratory oxygen use schedule daily hours value

Value of the number of hours of supplemental oxygen use per day

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

 Supplemental Demographics False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12196 Dual X-ray absorptiometry right leg lean value

Right leg lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual X-Ray Absorptiometry (DXA) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

 Supplemental Demographics False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

 Supplemental Magnetic Resonance Imaging (MRI) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10871 Dynamometry hand held muscle test able to break technique indicator

Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength

 Supplemental Hand Held Dynamometry False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Supplemental Social Status False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12380 Respiratory negative pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, negative pressure device

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19645 Imaging previous scan elapsed day count

The number of days that passed since the previous scan

 Supplemental Magnetic Resonance Imaging (MRI) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

 Supplemental Family History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12388 Respiratory ventilation mode bi-level positive pressure type

Type of bi-level positive pressure ventilation used by the support ventilation device

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19653 Imaging right short T1 recovery value

The value of short T1 recovery at a particular anatomic site on the right side

 Supplemental Magnetic Resonance Imaging (MRI) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19628 Breastfeeding indicator

Indicator of whether the mother breastfed the newborn

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16037 Pregnancy most recent live born infant indicator

Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests and Tracking False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12429 Polysomnography sleep latency duration

Duration required by the participant/subject to transition from full wakefulness to sleep

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

 Supplemental Family History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG/EKG) administration

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16051 Birth weight child value

Value of the weight of the participant/subject's child at birth

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12437 Polysomnography blood oxygen saturation mean non-REM sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) during non-rapid eye movement (REM) sleep from the polysomnography being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 201 - 225 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.