CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12456 Polysomnography transcutaneous carbon dioxide total sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during total sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12171 Dual X-ray absorptiometry scanner use type

Type of scanner used for dual X-ray absorptiometry (DXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12464 Polysomnography heart rate non-REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19738 Goniometry shoulder forward flexion measurement

Measurement in degrees of the passive range of motion for shoulder forward flexion

Supplemental Goniometry Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18848 Respiratory support positive pressure device delivery method other text

The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18825 Dual X-ray absorptiometry scanner use other text

The free-text field related to 'Dual X-ray absorptiometry scanner use type', specifying other text. The type of scanner used for dual X-ray absorptiometry (DXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12432 Polysomnography apnea hypopnea index type total event count

Count of total sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12408 Pulmonary gas exchange assessment performed location

The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10864 Dynamometry hand held muscle test performed indicator

Indicator of whether the hand held dynamometry testing was done

Supplemental Hand Held Dynamometry Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12440 Polysomnography percent sleep time total percent blood oxygen saturation value

Value representing the amount of total sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12416 Pulmonary blood gas partial pressure oxygen value

The numeric value of the blood gas partial pressure of oxygen (P02) in the blood

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Laboratory Tests and Tracking Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12384 Respiratory tracheostomy tube length measurement

Measurement of the length of the tracheostomy tube

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12448 Polysomnography end tidal carbon dioxide measured indicator

Indicator of whether end-Tidal CO2 (ETCO2) was measured in the polysomnography being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12424 Pulmonary gas exchange highest end tidal transcutaneous carbon dioxide value

The highest pressure of the end tidal CO2 (ETCO2) or transcutaneous CO2 (TCCO2) check while the participant/subject is sleeping

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17890 Allele number one missense nonsense variant or point mutation subclass information type

Type of missense/nonsense variant or point mutation subclass information, first allele number one

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Supplemental Laboratory Tests and Tracking Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG/EKG) administration

Supplemental Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16042 Delivery mode induced reason

Type of induced delivery that occurred during the live infant birth

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19671 Family history current decease age value

Value of current age or age at death for relative with the disease in question

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 226 - 250 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.