CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 451

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1838-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Grip Strength	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1891-C12173	C12173	Dual X-ray absorptiometry scan anatomical site	Site on the body that was scanned for dual X-ray absorptiometry (DXA)	Supplemental	Dual X-Ray Absorptiometry (DXA)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C19640	C19640	Polysomnography body position undefined time	Time spent in undefined body position for polysomnography	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12448	C12448	Polysomnography end tidal carbon dioxide measured indicator	Indicator of whether end-Tidal CO2 (ETCO2) was measured in the polysomnography being reported	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C12782	C12782	Gene additional variants unknown significance indicator	Indicator of whether there are additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2125-C12308	C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C04510	C04510	ECG QRS duration	Duration in milliseconds (msec) of the QRS complex for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16059	C16059	Weight delivery mother measurement	Measurement of participant's/subject's weight at the time she gave birth	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C12790	C12790	Gene exon first deleted duplicated name	Name of the first exon deleted or duplicated	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18242	C18242	Symptoms first appeared age value	Value of the age at which the participant/subject first noted a neuromuscular symptom	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C12825	C12825	ECG pace rhythm type	Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16169	C16169	Pregnancy outcome type	Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C12798	C12798	Gene missense nonsense variant point mutation location type	Type of location of the missense/nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C12833	C12833	ECG atrioventricular block third degree complete status	Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C18000	C18000	Congenital anomalies child specification text	Text specifying any congenital anomalies of the participant/subject	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C12807	C12807	Gene second disease allele indicator	Indicator of whether a second disease allele was identified	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16016	C16016	Prenatal testing date and time	Date the selected prenatal testing type was performed for the current pregnancy	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C17967	C17967	ECG administer date time clock type	Type of clock system used to record time of electrocardiogram (ECG/EKG) administration	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16027	C16027	Pregnancy prior history loss week count	Number of the week of pregnancy during which the stillbirth or miscarriage occurred	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1907-C01710	C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16049	C16049	Birth child date and time	Date of birth of participant/subject's most recent live birth	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.