CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18777 ECG heart rhythm result other text

The free-text field related to 'ECG heart rhythm result type' specifying other text. Type of heart rhythm apparent on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19627 FSHD prenatal testing text

Text specifying results from FSHD prenatal testing that was performed on the participant/subject

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17895 Genes sequenced with no mutations text

Text about additional genes sequenced with no mutations detected

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16028 Pregnancy prior history toxic exposure type

Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Supplemental Laboratory Tests and Tracking False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19667 Family history diagnosis type

Type of diagnosis method for relative

 Supplemental Family History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16050 Phenotypic sex child type

Sex of the participant/subject's child based on physical examination

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12783 Variant mutational analysis results available indicator

Whether the variant or mutational analysis results are available on this participant/ subject

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history

 Supplemental Medical History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16060 Weight delivery mother unit of measure

Units for the measurement of the participant's/subject's weight at the time she gave birth

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12791 Gene exon last deleted duplicated name

Identify exon last deleted or duplicated

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18243 Symptom first appear age type

Type of age of the participant/subject at first symptom appearance

 Supplemental Medical History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12826 ECG arrhythmia ventricular morphology type

Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17993 Prenatal test text

Text notes of any comments regarding the selected prenatal testing type

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12800 Gene missense nonsense variant or point mutation insertion deletion type

The insertion deletion type of the missense/nonsense variant or point mutation

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12834 ECG bundle branch block incomplete status

Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18001 Newborn complication child specification text

Text specifying other newborn complications

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12808 Gene sequenced with no variant or mutation indicator

Whether there are additional genes sequenced with no variants or mutations detected

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16017 Prenatal testing result

Results of the selected prenatal testing type

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18778 ECG ventricular arrhythmia other text

The free-text field related to 'ECG ventricular arrhythmia type' specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19628 Breastfeeding indicator

Indicator of whether the mother breastfed the newborn

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12444 Polysomnography blood oxygen saturation drop hour total sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 176 - 200 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.