CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12825 ECG pace rhythm type

Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12798 Gene missense nonsense variant point mutation location type

Type of location of the missense/nonsense variant or point mutation

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12438 Polysomnography blood oxygen saturation mean awake measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18002 Placenta umbilical cord abnormality specification text

Text describing placenta or umbilical cord abnormalities

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

 Supplemental Demographics False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16018 Pregnancy complication indicator

Indicator of whether the participant/subject had complications during the pregnancy

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12833 ECG atrioventricular block third degree complete status

Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12446 Polysomnography blood oxygen saturation drop hour non-REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during non-rapid eye movement (REM) sleep time

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

 Supplemental Demographics False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18777 ECG heart rhythm result type other text

The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12397 Respiratory support use frequency

Frequency of ventilation device use

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12189 Dual X-ray absorptiometry whole body total lean value

Percentage of lean whole body mass. Dual X-ray absorptiometry (DEXA)

 Supplemental Dual X-Ray Absorptiometry (DXA) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12405 Respiratory other therapies description text

Text describing other relevant therapies for the participant's/subject's respiration system

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12197 Dual X-ray absorptiometry left leg lean value

Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual X-Ray Absorptiometry (DXA) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12371 Respiratory Intervention-support device brand name

The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10872 Dynamometry hand held no result reason

Reason why there was no hand held dynamometry result for the muscle

 Supplemental Hand Held Dynamometry False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12381 Respiratory tracheostomy date

Date of the participant's/subject's tracheostomy

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12389 Respiratory ventilation mode assist control type

Type of assist control ventilation used

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19629 Breastfeeding Absent text

Text describing the reason why the mother did not breastfeed

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12423 Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value

The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 101 - 125 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.