CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 451

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1854-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Social Status	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1899-C12378	C12378	Respiratory support negative pressure device delivery method type	Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C12833	C12833	ECG atrioventricular block third degree complete status	Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C18000	C18000	Congenital anomalies child specification text	Text specifying any congenital anomalies of the participant/subject	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12459	C12459	Polysomnography transcutaneous carbon dioxide awake value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during wakefulness	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16016	C16016	Prenatal testing date and time	Date the selected prenatal testing type was performed for the current pregnancy	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C17878	C17878	Polysomnography limited type text	Text description of the polysomnography being reported if it is not a full polysomnography	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16027	C16027	Pregnancy prior history loss week count	Number of the week of pregnancy during which the stillbirth or miscarriage occurred	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1907-C01710	C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12427	C12427	Polysomnography study start time	Time at which the sleep study began	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16049	C16049	Birth child date and time	Date of birth of participant/subject's most recent live birth	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12435	C12435	Polysomnography blood oxygen saturation mean total sleep measurement	Measurement, in percent, of the mean blood oxygen saturation (Sp02) for total sleep from the polysomnography being reported	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1038-C12411	C12411	Pulmonary gas exchange oxygen saturation value	The value of the oxygen saturation (SpO2) check	Supplemental	Measures of Gas Exchange	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16059	C16059	Weight delivery mother measurement	Measurement of participant's/subject's weight at the time she gave birth	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12443	C12443	Polysomnography percent awake time percent blood oxygen saturation value	Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18242	C18242	Symptoms first appeared age value	Value of the age at which the participant/subject first noted a neuromuscular symptom	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1038-C12419	C12419	Pulmonary gas exchange average oxygen saturation value	The average oxygen saturation value while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C12825	C12825	ECG pace rhythm type	Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C12451	C12451	Polysomnography end tidal carbon dioxide REM sleep value	Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1854-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1899-C12379	C12379	Respiratory negative pressure device initiation date	Date of initiation of non-invasive, negative pressure	Supplemental	Respiratory Interventions	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1907-C01704	C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

Displaying 151 - 175 of 451

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.