CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 500
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19287 Income basic needs status

The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing.

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19649 Imaging bilateral T1 score

Right and left side T1 score in imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C20323 Imaging limb anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18718 Imaging scanner strength other text

The free-text field related to 'Imaging scanner strength value' specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19626 FSHD prenatal testing indicator

Indicator of whether prenatal testing for FSHD was performed

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19640 Polysomnography body position undefined time

Time spent in undefined body position for polysomnography.

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19503 Caregiver primary indicator

Indicator of whether participant/subject has a primary caregiver

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19650 Imaging right anatomic site T1 score value

T1 Score value at particular anatomic site on the right side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18679 Family history medical condition relative other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19641 Polysomnography arousal index type total sleep event count

Count of total sleep events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19644 Img first follow up scan status

The status of whether this is the first scan or a follow up scan

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19627 FSHD prenatal testing text

Text specifying results from FSHD prenatal testing that was performed on the participant/subject

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19651 Imaging left anatomic site T1 score value

T1 Score value at particular anatomic site on the left side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19667 Family history diagnosis type

Type of diagnosis method for relative

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19642 Polysomnography arousal index type REM event count

Count of non rapid eye movement (REM) events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19628 Breastfeeding indicator

Indicator of whether the mother breastfed the newborn

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19652 Imaging bilateral short T1 inversion recovery value

Testing for STIR (short T1 Inversion recovery) on both the left and right side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19643 Polysomnography arousal index type NREM event count

Count of rapid eye movement (REM) events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19646 MRI available sequence type

Type of sequences available in MRI

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 1 - 25 of 500

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.