CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 500
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C19629 Breastfeeding Absent text

Text describing the reason why the mother did not breastfeed

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19647 Imaging short T1 inversion recovery lower limbs anatomic site

Lower limbs anatomic site of short tau inversion recovery (STIR) sequence

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19733 Imaging T1 MRI upper limb score

The value of the sum of the T1 score for each upper-limb muscle, bilaterally

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19642 Polysomnography arousal index type REM event count

Count of non rapid eye movement (REM) events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19525 Disease/condition associated other specify text

Free text field that specifies the associated disease or condition

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19630 Breastfeeding Month Count

The value of the number of months the mother breastfed

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19648 Imaging short T1 inversion recovery upper limbs anatomic site

Upper limbs anatomic site of short tau inversion recovery (STIR) sequence

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19646 MRI available sequence type

Type of sequences available in MRI

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19734 Imaging T1 MRI lower limb score

The value of the sum of the T1 score for each lower-limb muscle, bilaterally

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19643 Polysomnography arousal index type NREM event count

Count of rapid eye movement (REM) events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19678 Associated Disease Condition Type

Type of disease or medical condition that is commonly associated with the primary disease under investigation

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19632 Weight pediatric unit of measure

Unit of measure for the pediatric weight numerical value

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19287 Income basic needs status

The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19649 Imaging bilateral T1 score

Right and left side T1 score in imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C20323 Imaging limb anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19636 Polysomnography body position abdomen time

Time spent in abdomen body position for polysomnography

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19735 Sleep Periodic Limb Movement index value

Value, in movements per hour of total sleep time, of the Periodic Limb Movement index of repetitive and stereotyped limb movements during sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19503 Caregiver primary indicator

Indicator of whether participant/subject has a primary caregiver

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19650 Imaging right anatomic site T1 score value

T1 Score value at particular anatomic site on the right side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Goniometry Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 1 - 25 of 500

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.