CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 451

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1858-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C19670	C19670	Family history diagnosis age unknown status	Status related to whether the participant knows the age of the relative when diagnosed	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18241	C18241	Diagnosis age value unit of measure	Unit of measure for age value of the participant when initially diagnosed with disease/disorder	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1845-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1845-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F2130-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental-Highly Recommended	Prior and Concomitant Medications	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1830-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance Imaging (MRI)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C08006	C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1845-C17396	C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Supplemental	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.