CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12450 Polysomnography end tidal carbon dioxide total sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during total sleep

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12318 Pulmonary function forced vital capacity peak flow indicator

Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12329 Respiratory manual cough assist use frequency

Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18853 Pulmonary gas exchange assessment performed other text

The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12833 ECG atrioventricular block third degree complete status

Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12825 ECG pace rhythm type

Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12459 Polysomnography transcutaneous carbon dioxide awake value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during wakefulness

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12379 Respiratory negative pressure device initiation date

Date of initiation of non-invasive, negative pressure

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

 Supplemental Laboratory Tests and Tracking False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17878 Polysomnography limited type text

Text description of the polysomnography being reported if it is not a full polysomnography

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12427 Polysomnography study start time

Time at which the sleep study began

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12395 Respiratory pressure support value

Value of the pressure support

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12435 Polysomnography blood oxygen saturation mean total sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) for total sleep from the polysomnography being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

 Supplemental-Highly Recommended Pulmonary Function Testing False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12411 Pulmonary gas exchange oxygen saturation value

The value of the oxygen saturation (SpO2) check

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12403 Respiratory oxygen use schedule type

Type of schedule of supplemental oxygen use

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12443 Polysomnography percent awake time percent blood oxygen saturation value

Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

 Supplemental-Highly Recommended Pulmonary Function Testing False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12195 Dual X-ray absorptiometry left arm lean value

Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual X-Ray Absorptiometry (DXA) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12419 Pulmonary gas exchange average oxygen saturation value

The average oxygen saturation value while the participant/subject is sleeping

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18851 Respiratory support ventilation mode other text

The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12451 Polysomnography end tidal carbon dioxide REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12330 Respiratory manual cough assist use daily frequency

Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12834 ECG bundle branch block incomplete status

Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 251 - 275 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.