CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 500
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

Supplemental-Highly Recommended Prior and Concomitant Medications Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19645 Imaging previous scan elapsed day count

The number of days that passed since the previous scan

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19670 Family history diagnosis age indicator

Indicator for whether the participant/subject knows the age of the relative when diagnosed

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19671 Family history current decease age value

Value of current age or age at death for relative with the disease in question

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19632 Weight pediatric unit of measure

Unit of measure for the pediatric weight numerical value

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19577 Length infants measurement unit of measure

Unit of measure for the length numerical value for subject/participant

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C20323 Imaging limb anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19667 Family history diagnosis type

Type of diagnosis method for relative

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19737 Goniometry shoulder abduct measurement

Measurement in degrees of the passive range of motion for shoulder abduction.

Supplemental Goniometry Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19738 Goniometry shoulder forward flexion measurement

Measurement in degrees of the passive range of motion for shoulder forward flexion.

Supplemental Goniometry Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19735 Sleep Periodic Limb Movement index value

Value, in movements per hour of total sleep time, of the Periodic Limb Movement index of repetitive and stereotyped limb movements during sleep.

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19733 Imaging T1 MRI upper limb score

The value of the sum of the T1 score for each upper-limb muscle, bilaterally.

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19734 Imaging T1 MRI lower limb score

The value of the sum of the T1 score for each lower-limb muscle, bilaterally.

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19678 Associated Disease Condition Type

Type of disease or medical condition that is commonly associated with the primary disease under investigation.

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19652 Imaging bilateral short T1 inversion recovery value

Testing for STIR (short T1 Inversion recovery) on both the left and right side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19646 MRI available sequence type

Type of sequences available in MRI

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19643 Polysomnography arousal index type NREM event count

Count of rapid eye movement (REM) events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19653 Imaging right short T1 recovery value

The value of short T1 recovery at a particular anatomic site on the right side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19636 Polysomnography body position abdomen time

Time spent in abdomen body position for polysomnography.

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19654 Imaging left short T1 recovery value

The value short T1 recovery (STIR) at a particular anatomic site on the left side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 1 - 25 of 500

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.