CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 451
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

Supplemental-Highly Recommended Pulmonary Function Testing Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12374 Respiratory support positive pressure device delivery method type

Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12458 Polysomnography transcutaneous carbon dioxide non-REM sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17877 Polysomnography end time clock type

Type of clock used to record the time at which the sleep study ended

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12426 Polysomnography study type

Type of polysomnography (sleep study) that is being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12434 Polysomnography apnea hypopnea index type non-REM event count

Count of non-rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12410 Pulmonary gas exchange fraction of inspired oxygen value

The fraction of inspired oxygen (FIO2) in the blood

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12442 Polysomnography percent sleep time non-REM percent blood oxygen saturation value

Value representing the amount of non-rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12418 Pulmonary blood gas base excess value

The numeric value for the amount of base excess or deficit in the blood

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12450 Polysomnography end tidal carbon dioxide total sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during total sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18853 Pulmonary gas exchange assessment performed other text

The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12830 ECG conduction block status

Status of a conduction block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental-Highly Recommended Prior and Concomitant Medications Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Laboratory Tests and Tracking Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00202 Education school participation status

Status of participant/subject's current attendance at school

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

Supplemental Laboratory Tests and Tracking Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 251 - 275 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.